Disparidades de salud en el mundo real de los pacientes con esclerosis múltiple

Q4 Medicine
Roberto Rotta Escalante , Osvaldo Fustinoni , María Elisa Barone , José R. Elli , María del Carmen Martínez Perea , Grupo de trabajo de Bioética de la Sociedad Neurológica Argentina
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引用次数: 0

Abstract

Introduction

Many countries, developed or not, endure social, economic, cultural, ethnic, environmental and also health disparities.

Objective

To point out health disparities occurring in the real world care of patients with multiple sclerosis.

Development

Recently published data increasingly mention health disparities in multiple sclerosis obtained from real world data and not from randomized clinical trials. The most prevalent include limited access to specific medication, magnetic resonance imaging, other essential diagnostic studies, neurorehabilitation. Disregard of the various handicaps caused by the disease (poor quality of life, difficulties of daily living), age, gender, ethnicity, socioeconomic status, environment, dwelling and employment are also mentioned. Analyzed with adequate instruments, these data might have hard evidence value on health disparities, at present underestimated when assessing the care of patients with this disease, and consequently allowing for more scientifically rigorous diagnostic and therapeutic decisions.

Conclusions

Health disparities are relevant evidence in multiple sclerosis patients and should be included in the assessment and decision making of their management. Correcting them would contribute to a better equity in health care.

多发性硬化症患者在现实世界中的健康差异
许多国家,无论发达与否,都存在着社会、经济、文化、种族、环境以及健康方面的差异。目的指出现实生活中多发性硬化症患者护理存在的健康差异。最近发表的数据越来越多地提到多发性硬化症的健康差异,这些数据来自真实世界的数据,而不是随机临床试验。最普遍的包括获得特定药物、磁共振成像、其他基本诊断研究、神经康复的机会有限。不考虑疾病造成的各种残疾(生活质量差、日常生活困难),还提到了年龄、性别、种族、社会经济地位、环境、居住和就业。如果使用适当的工具进行分析,这些数据可能对健康差异具有确凿的证据价值,目前在评估对这种疾病患者的护理时低估了这一点,因此可以做出更严格的科学诊断和治疗决定。结论健康差异是多发性硬化症患者健康差异的重要证据,应纳入多发性硬化症患者健康差异的评估和治疗决策。纠正这些错误将有助于提高医疗保健的公平性。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Neurologia Argentina
Neurologia Argentina Medicine-Neurology (clinical)
CiteScore
0.50
自引率
0.00%
发文量
34
期刊介绍: Neurología Argentina es la publicación oficial de la Sociedad Neurológica Argentina. Todos los artículos, publicados en español, son sometidos a un proceso de revisión sobre ciego por pares con la finalidad de ofrecer información original, relevante y de alta calidad que abarca todos los aspectos de la Neurología y la Neurociencia.
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