The Impact of COVID-19 Lockdown on Parents and Young People With Autism Spectrum Disorder (ASD)

IF 1.6 3区社会学 Q2 SOCIAL WORK

Australian Social Work Pub Date : 2023-04-17 DOI:10.1080/0312407x.2023.2186254

C. Humphreys, L. Novy, Natalie Cergovski, Hoi Ching Lai, K. Mcvilly

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引用次数: 0

Abstract

The spread of COVID-19 resulted in restrictive lockdowns. For families supporting young people with autism spectrum disorder (ASD), the service system was stripped away. The aim of this study was to explore the impact of this challenging situation on a group of Australian carers and parents of children and young people with ASD, with an intention to inform policy and practice based on the lived experiences of these families. A survey of parents of children and young people with ASD in Australia returned 117 responses, of which 86 responded to open-ended questions about COVID-19 lockdowns. Twelve parents responded to the invitation to be interviewed. Interview and survey data were analysed thematically. Five themes emerged: accessing support services, receiving support services online, changes in behaviour, higher levels of conflict, and impact on health and relationships. The experience of lockdowns under COVID-19 undermined informal and formal support systems, and had a particularly strong negative impact on the experiences of children with ASD and their families. These findings also provide support for understanding the social model of disability as a mainstay in the lives of children with disabilities and their carers. IMPLICATIONS The social model of disability was dismantled for children and young people and their carers during the COVID crisis. This unacceptable attack on the human rights of disabled people (people with a disability) needs future planning to ensure that it does not occur again. Future crises require more nuanced policy and practice responses that do not close off all child and family supports to children with ASD and their carers. (PsycInfo Database Record (c) 2023 APA, all rights reserved)

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COVID-19封锁对患有自闭症谱系障碍(ASD)的父母和年轻人的影响

新冠肺炎的传播导致了限制性封锁。对于支持患有自闭症谱系障碍（ASD）的年轻人的家庭，服务系统被剥夺了。本研究的目的是探讨这种具有挑战性的情况对澳大利亚自闭症谱系障碍儿童和年轻人的护理人员和父母的影响，旨在根据这些家庭的生活经历为政策和实践提供信息。一项针对澳大利亚自闭症谱系障碍儿童和年轻人父母的调查返回了117份回复，其中86份回复了关于新冠肺炎封锁的开放式问题。12位家长回应了采访邀请。访谈和调查数据按主题进行分析。出现了五个主题：获得支持服务、在线接受支持服务、行为变化、冲突加剧以及对健康和人际关系的影响。新冠肺炎下的封锁经历破坏了非正式和正式的支持系统，并对自闭症谱系障碍儿童及其家人的经历产生了特别强烈的负面影响。这些发现也为理解残疾作为残疾儿童及其照顾者生活支柱的社会模式提供了支持。影响在新冠肺炎危机期间，儿童、年轻人及其护理人员的残疾社会模式被打破。这种对残疾人（残疾人）人权的不可接受的攻击需要未来的规划，以确保这种情况不会再次发生。未来的危机需要更细致的政策和实践应对措施，不要关闭对自闭症谱系障碍儿童及其护理人员的所有儿童和家庭支持。（PsycInfo数据库记录（c）2023 APA，保留所有权利）

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Australian Social Work SOCIAL WORK-

CiteScore

4.20

自引率

16.70%

发文量

期刊介绍： Australian Social Work is an international peer-reviewed journal reflecting current thinking and trends in Social Work. The Journal promotes the development of practice, policy and education, and publishes original research, theoretical papers and critical reviews that build on existing knowledge. The Journal also publishes reviews of relevant professional literature, commentary and analysis of social policies and encourages debate in the form of reader commentary on articles. Australian Social Work has grown out of the Australian context and continues to provide a vehicle for Australian and international authors. The Journal invites submission of papers from authors worldwide and all contributors are encouraged to present their work for an international readership.