Multifamily interventions in the context of inherited genetic conditions: A scoping review

Abstract

This scoping review sought to examine the existing literature on multifamily interventions with families dealing with inherited genetic conditions. It also seeks to identify gaps in the evidence to help guide future research and intervention development. Four databases (PubMed, Web of Sciences, Scopus and PsycInfo) were systematically searched and analysed, resulting in five publications for inclusion. The main findings evidence two main themes: characteristics of multifamily interventions, and evaluation of the intervention and impact on participants. These findings suggest that multifamily interventions can provide families with extended support beyond the care usually offered by genetic healthcare services and contribute to enhancing positive change in key aspects of adaptation and coping with an inherited genetic conditions. Multifamily discussion groups are a methodology that is particularly suitable when working with families in this context. Collaboration between genetic healthcare services and accredited systemic family therapists is required to sustain the implementation of multifamily discussion groups and their feasibility. Research on the effectiveness, feasibility and economic viability of multifamily interventions is also needed.