eHealth platforms as user–data communication: Examining patients’ struggles with digital health data

IF 2 Q2 COMMUNICATION
M. Mahnke, Mikka Nielsen
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引用次数: 2

Abstract

Abstract Sundhed.dk is Denmark's national eHealth platform allowing citizens to access their personal health data. Based on 16 qualitative interviews with patients, our aim in this article is to examine how patients engage with their health data. First, we illustrate how patients struggle in different ways to make sense of numerical measurements and written notes. Second, we examine the platform as a communicative space and suggest that a new “medical-domestic” space arises in which medical data is interpreted and negotiated at home. Third, we investigate how health data affects patients’ experiences of being involved as equal partners and how access to data potentially enhances patient empowerment, but also how expectations are sometimes unfulfilled. In conclusion, we argue for a broader public dialogue in order to make sure that the data provided actually creates an optimal starting point and does not foster insecurity or self-doubt on the patient's side.
电子健康平台作为用户数据交流:检查患者与数字健康数据的斗争
抽象Sundhed。dk是丹麦的国家电子健康平台,允许公民访问他们的个人健康数据。基于对患者的16次定性访谈,我们在本文中的目的是研究患者如何参与他们的健康数据。首先,我们说明了患者如何以不同的方式努力理解数字测量和书面笔记。其次,我们将平台作为一个交流空间进行研究,并建议出现一个新的“医疗-家庭”空间,在这个空间中,医疗数据可以在家中进行解释和协商。第三,我们调查健康数据如何影响患者作为平等伙伴参与的体验,以及获取数据如何潜在地增强患者赋权,以及期望有时如何无法实现。总之,我们主张进行更广泛的公众对话,以确保所提供的数据实际上创造了一个最佳的起点,而不是在患者方面培养不安全感或自我怀疑。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Nordicom Review
Nordicom Review COMMUNICATION-
CiteScore
2.80
自引率
9.10%
发文量
10
审稿时长
52 weeks
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