Respondent Burden and Readability of Patient-Reported Outcome Measures for People With Aphasia

IF 1.8 4区医学 Q1 LINGUISTICS

Topics in Language Disorders Pub Date : 2022-07-01 DOI:10.1097/TLD.0000000000000288

Amy Engelhoven, Lauren Bislick, Sara Gray, R. H. Pompon

引用次数: 2

Abstract

Purpose: Patient-reported outcome measures (PROMs) for persons with aphasia (PWA) are commonly used to measure various outcomes. Persons with aphasia commonly present with language deficits that can likely increase respondent burden. Elements that contribute to respondent burden include readability, design, and formatting methods. The aims of this study were to determine how PROMs for PWA rate in level of respondent burden and on readability levels. Method: Irwin's 2012 review of PROMs for PWA was used for inclusion criteria and additional PROMs developed after 2012 were identified. This method resulted in 14 PROMs, which were rated on proposed respondent burden criteria and also underwent a readability analysis. Results: Six PROMs achieved a 7 or higher with the proposed 10-point respondent burden measure, indicating lower respondent burden. Eight PROMs met the nationally recommended reading level of sixth grade. Conclusions: Results indicated that the several PROMs available for PWA fail to minimize respondent burden.

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失语症患者报告结果指标的应答者负担和可读性

目的：失语症（PWA）患者报告的结果测量（PROM）通常用于测量各种结果。失语症患者通常表现为语言缺陷，这可能会增加受访者的负担。造成受访者负担的因素包括可读性、设计和格式方法。本研究的目的是确定PWA的PROM在受访者负担水平和可读性水平上的比率。方法：Irwin 2012年对PWA PROMs的综述用于纳入标准，并确定了2012年后开发的其他PROMs。该方法产生了14个PROM，这些PROM根据拟议的受访者负担标准进行评级，并进行了可读性分析。结果：6名PROM在所提出的10分受访者负担测量中获得了7分或更高的成绩，表明受访者负担较低。八本PROM达到了国家推荐的六年级阅读水平。结论：研究结果表明，可用于PWA的几种PROM未能最大限度地减轻应答者的负担。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Topics in Language Disorders Multiple-

CiteScore

3.50

自引率

0.00%

发文量

期刊介绍： Topics in Language Disorders (TLD) is a double-blind peer-reviewed topical journal that has dual purposes: (1) to serve as a scholarly resource for researchers and clinicians who share an interest in spoken and written language development and disorders across the lifespan, with a focus on interdisciplinary and international concerns; and (2) to provide relevant information to support theoretically sound, culturally sensitive, research-based clinical practices.