The Experience of Parenting Children with Autism Spectrum Disorder: A Qualitative Content Analysis

IF 1.1 Q3 FAMILY STUDIES

Child Care in Practice Pub Date : 2021-07-08 DOI:10.1080/13575279.2021.1939655

Harry M. Voulgarakis, J. S. Lisa, K. A. Conde, Erica A. Davies

引用次数: 0

Abstract

ABSTRACT Objective The aim of this study was to explore the range of experiences encountered by parents and caretakers of children with autism spectrum disorder. Materials and methods An inductive conventional content analysis approach was utilized for this study. Twenty-four (N = 24) parent responses to open-ended questions about their experience parenting a child with autism spectrum disorder were analyzed. Results Based on content analysis of responses, five main categories emerged: emotional distress, growth and role change, perspective change, support or the need for support, and family strain. Within the main categories, 20 subcategories were identified. Conclusion Findings from this study show that families and caretakers of children with autism spectrum disorder endorse many emotions and complex experiences, both positive and negative. The implications from these data are great and include the need for support and resources for families impacted by autism spectrum disorder.

查看原文本刊更多论文

孤独症谱系障碍儿童的养育经验:质性内容分析

摘要目的本研究旨在探讨自闭症谱系障碍儿童的父母和看护人所遇到的各种经历。材料和方法本研究采用归纳的常规内容分析方法。二十四（N = 24）分析了父母对开放式问题的回答，这些问题涉及他们养育自闭症谱系障碍儿童的经历。结果基于对反应的内容分析，出现了五个主要类别：情绪困扰、成长和角色变化、视角变化、支持或需要支持以及家庭压力。在主要类别中，确定了20个子类别。结论本研究结果表明，自闭症谱系障碍儿童的家庭和照顾者认同许多积极和消极的情绪和复杂的经历。这些数据的影响是巨大的，包括需要为受自闭症谱系障碍影响的家庭提供支持和资源。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

求助全文

约1分钟内获得全文求助全文

来源期刊

Child Care in Practice Nursing-Community and Home Care

CiteScore

3.30

自引率

5.30%

发文量

期刊介绍： Child Care in Practice is a quarterly, peer-reviewed journal that provides an international forum for professionals working in all disciplines in the provision of children’s services, including social work, social care, health care, medicine, psychology, education, the police and probationary services, and solicitors and barristers working in the family law and youth justice sectors. The strategic aims and objectives of the journal are: • To develop the knowledge base of practitioners, managers and other professionals responsible for the delivery of professional child care services. The journal seeks to contribute to the achievement of quality services and the promotion of the highest standards. • To achieve an equity of input from all disciplines working with children. The multi-disciplinary nature of the journal reflects that the key to many successful outcomes in the child care field lies in the close co-operation between different disciplines. • To raise awareness of often-neglected issues such as marginalization of ethnic minorities and problems consequent upon poverty and disability. • To keep abreast of and continue to influence local and international child care practice in response to emerging policy. • To include the views of those who are in receipt of multi-disciplinary child care services. • To welcome submissions on promising practice developments and the findings from new research to highlight the breadth of the work of the journal’s work.