A comparison of a community-based dementia support programme and nursing home-based day care: Effects on carer needs, emotional burden and quality of life

IF 2.4 3区社会学 Q2 GERONTOLOGY

Dementia-International Journal of Social Research and Practice Pub Date : 2019-07-17 DOI:10.1177/1471301219861767

A. M. van Haeften-van Dijk, F. Meiland, B. Hattink, Ton JEM Bakker, R. Dröes

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引用次数: 2

Abstract

Objectives Within an implementation study, we investigated the effectiveness of a combined community-based day care programme for persons with dementia and their carers versus traditional psychogeriatric nursing home-based day care. The effects on needs, sense of competence, burden and quality of life of the family carers were studied. Methods A pretest–posttest control group design among family carers of people with dementia who joined community-based day care centres (n = 67) or nursing home-based day care centres (n = 64). Results After six months, family carers using community-based day care more often expressed an unmet need for support regarding psychological distress than carers utilising nursing home-based day care. No effect of community-based day care on sense of competence was found. However, carers with a low sense of competence at baseline using community-based compared to nursing home-based day care became less emotionally burdened by behaviour and mood problems of their relative. Conclusion and discussion: Overall, no added value of community-based day care on needs, sense of competence, burden and quality of life was found. Increased unmet needs on psychological distress may have been caused by the increased awareness of carers participating in the carer programme of community-based day care regarding their own unmet support needs. For carers with a low sense of competence, community-based day care proves to decrease the impact of behaviour and mood problems of their relative. A larger controlled follow-up study is recommended to understand the long-term effects of community-based day care over nursing home-based day care.

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以社区为基础的痴呆症支持计划和以家庭为基础的日间护理的比较:对护理者需求、情绪负担和生活质量的影响

在一项实施性研究中，我们调查了针对痴呆症患者及其护理人员的综合社区日间护理计划与传统的老年心理护理家庭日间护理的有效性。研究其对家庭照顾者的需求、能力感、负担及生活质量的影响。方法采用前测后测对照组设计，选取社区日间护理中心(n = 67)和居家日间护理中心(n = 64)痴呆患者的家庭护理人员。结果6个月后，使用社区日托的家庭照顾者比使用家庭日托的家庭照顾者在心理困扰方面更多地表达了未满足的支持需求。社区日托对能力感没有影响。然而，与以家庭为基础的日间护理相比，以社区为基础的能力感较低的护理人员对其亲属的行为和情绪问题的情绪负担较少。结论与讨论:总体而言，社区日托在需求、能力感、负担和生活质量方面没有增加价值。心理困扰方面未得到满足的需求增加，可能是由于参加社区日托护理方案的护理人员对自己未得到满足的支助需求的认识有所提高。对于能力感较低的护理人员，以社区为基础的日托证明可以减少其亲属的行为和情绪问题的影响。建议进行一项更大规模的对照随访研究，以了解社区日托对家庭日托的长期影响。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Dementia-International Journal of Social Research and Practice GERONTOLOGY-

CiteScore

5.60

自引率

12.50%

发文量

114

期刊介绍： Dementia acts as a major forum for social research of direct relevance to improving the quality of life and quality of care for people with dementia and their families. For the first time an international research journal is available for academics and practitioners that has as its primary paradigm the lived experience of dementia.