Centralized Decentralization, or Distributed Leadership as Paradox: The Case of the Patient Innovation’s COVID-19 Portal

IF 3 Q2 MANAGEMENT

JOURNAL OF CHANGE MANAGEMENT Pub Date : 2021-04-03 DOI:10.1080/14697017.2021.1917493

Pedro Oliveira, M. P. e Cunha

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引用次数: 10

Abstract

ABSTRACT Patients with rare diseases, as well as their caregivers, sometimes develop new solutions to deal with their health conditions but only a small fraction share the solution with their doctor or other health professionals. When the value of patient-developed solutions is considered, the evidence is that these solutions consistently help improve the overall quality of life. Patient-developed innovations are very heterogeneous in nature, level of quality, sophistication, and cost; nonetheless, the majority are frugal in cost and design. In this paper, we explore the organizational lessons of the patient innovation platform and community, and its leadership expressions, in the context of the COVID-19 pandemic. Multi-sided online platforms for collecting, curating, and distributing those innovations can help in the fight against the pandemic by centralizing decentralization and we consider this theme in terms of our understanding of when leadership is distributed and when it is not. Distributed leadership can be considered as a paradox, a process in which leadership is retained and dispersed.

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集中式去中心化或分布式领导悖论——以患者创新新冠肺炎门户网站为例

摘要罕见病患者及其护理人员有时会开发新的解决方案来处理他们的健康状况，但只有一小部分人与医生或其他卫生专业人员共享解决方案。当考虑到患者开发的解决方案的价值时，有证据表明这些解决方案始终有助于提高整体生活质量。患者开发的创新在性质、质量水平、复杂程度和成本方面都非常异质；尽管如此，大多数人在成本和设计上都很节俭。在本文中，我们探讨了新冠肺炎大流行背景下患者创新平台和社区的组织经验教训及其领导力表达。收集、策划和分发这些创新的多方面在线平台可以通过集中权力下放来帮助抗击疫情，我们从理解领导力何时分发和何时不分发的角度来考虑这一主题。分布式领导可以被认为是一个悖论，一个保留和分散领导的过程。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

JOURNAL OF CHANGE MANAGEMENT MANAGEMENT-

CiteScore

6.60

自引率

20.00%

发文量

期刊介绍： Journal of Change Management is a multidisciplinary and international forum for critical, mainstream and alternative contributions - focusing as much on psychology, ethics, culture and behaviour as on structure and process. JCM is a platform for open and challenging dialogue and a thorough critique of established as well as alternative practices. JCM is aiming to provide all authors with a first decision within six weeks of submission.