Zaire Cullins, Michael Forrest Behne, Lauren Brinkley-Rubinstein
{"title":"The current state of Carceral health data: an analysis of \"Listening Sessions\" with stakeholders.","authors":"Zaire Cullins, Michael Forrest Behne, Lauren Brinkley-Rubinstein","doi":"10.1186/s40352-023-00239-4","DOIUrl":null,"url":null,"abstract":"<p><strong>Background: </strong>Understanding the health conditions of those under carceral control is often made difficult due to lack of access to data. Yet, as has been made clear during the COVID-19 pandemic, is that data is essential to understand the scope of disease and how best to allocate resources. To better understand the needs of criminal legal oriented research and non-profit organizations, we interviewed stakeholders to better understand how they use existing data, what data they lack, and what data they would like to have to optimally assess the health of people who are incarcerated.</p><p><strong>Results: </strong>Stakeholders reported a lack of trust and data availability as key issues. Many perceived the few institutions that do collect and disseminate data as obfuscating data or having a bias in collection and reporting. Additionally, concerns such as balancing the interest of systems-impacted people with advocacy were described as concerning for participants.</p><p><strong>Conclusions: </strong>To tackle these issues of transparency and availability, the authors believe that an independent oversight body could be instrumental to ensuring accurate and timely data collection and reporting. As many participants turned to creating their own data, coalition building could be influential as a large network of resources may support capturing the varied experiences of people who are incarcerated.</p>","PeriodicalId":37843,"journal":{"name":"Health and Justice","volume":"11 1","pages":"40"},"PeriodicalIF":3.0000,"publicationDate":"2023-09-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10537811/pdf/","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Health and Justice","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1186/s40352-023-00239-4","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"CRIMINOLOGY & PENOLOGY","Score":null,"Total":0}
引用次数: 0
Abstract
Background: Understanding the health conditions of those under carceral control is often made difficult due to lack of access to data. Yet, as has been made clear during the COVID-19 pandemic, is that data is essential to understand the scope of disease and how best to allocate resources. To better understand the needs of criminal legal oriented research and non-profit organizations, we interviewed stakeholders to better understand how they use existing data, what data they lack, and what data they would like to have to optimally assess the health of people who are incarcerated.
Results: Stakeholders reported a lack of trust and data availability as key issues. Many perceived the few institutions that do collect and disseminate data as obfuscating data or having a bias in collection and reporting. Additionally, concerns such as balancing the interest of systems-impacted people with advocacy were described as concerning for participants.
Conclusions: To tackle these issues of transparency and availability, the authors believe that an independent oversight body could be instrumental to ensuring accurate and timely data collection and reporting. As many participants turned to creating their own data, coalition building could be influential as a large network of resources may support capturing the varied experiences of people who are incarcerated.
期刊介绍：
Health & Justice is open to submissions from public health, criminology and criminal justice, medical science, psychology and clinical sciences, sociology, neuroscience, biology, anthropology and the social sciences, and covers a broad array of research types. It publishes original research, research notes (promising issues that are smaller in scope), commentaries, and translational notes (possible ways of introducing innovations in the justice system). Health & Justice aims to: Present original experimental research on the area of health and well-being of people involved in the adult or juvenile justice system, including people who work in the system; Present meta-analysis or systematic reviews in the area of health and justice for those involved in the justice system; Provide an arena to present new and upcoming scientific issues; Present translational science—the movement of scientific findings into practice including programs, procedures, or strategies; Present implementation science findings to advance the uptake and use of evidence-based practices; and, Present protocols and clinical practice guidelines. As an open access journal, Health & Justice aims for a broad reach, including researchers across many disciplines as well as justice practitioners (e.g. judges, prosecutors, defenders, probation officers, treatment providers, mental health and medical personnel working with justice-involved individuals, etc.). The sections of the journal devoted to translational and implementation sciences are primarily geared to practitioners and justice actors with special attention to the techniques used.
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