The ethical pathway of individuals with stroke-A follow-up study.

IF 1.9 4区 医学 Q2 NURSING
Scandinavian Journal of Caring Sciences Pub Date : 2024-03-01 Epub Date: 2023-10-03 DOI:10.1111/scs.13215
Rannikko Sunna, Suhonen Riitta, Pasanen Miko, Leino-Kilpi Helena
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引用次数: 0

Abstract

Aim: To analyse the ethical pathway as perceived by individuals with stroke (IwS) in the first three post-stroke months. In the novel concept of ethical pathway, dignity, privacy, and autonomy are considered as dimensions of the ethical pathway while the pathway illustrates their potential change in the post-stroke time. Furthermore, the focus of interest was on whether the perceived realisation of values is associated with the life situational factors of symptoms diminishing functioning, social environment, and self-empowerment.

Methodological design and justification: A follow-up study with a descriptive correlational design was used to capture the changes in the perceived realisation of values.

Ethical issues and approval: The study followed the ethical principles of research involving human participants. The study was approved by the ethics committee of the university and one of the university hospitals following national standards. Permission to conduct the study was obtained from the university hospitals.

Research methods and instrument: Data were collected from IwS after the onset of stroke and 3 months post-stroke with the Ethical Pathway of Individuals with Stroke instrument and background questions and were analysed statistically.

Results: Thirty-six participants completed the questionnaire at both measurement points. Wide variety in the ethical pathway was detected. IwS' perceived dignity decreased and autonomy increased. Privacy did not change significantly. Of the life situational factors, IwS perceived less symptoms diminishing functioning and stronger self-empowerment while social environment was perceived as rather stable. Only one association was detected between the dimensions of the ethical pathway and life situational factors: autonomy had a low negative correlation with social environment of health care professionals.

Conclusions and study limitations: The results provide preliminary evidence of the dynamic nature of the ethical pathway. The ethical pathway was incompletely realised for most participants and requires special attention and improvement in health care. The sample size is small and the results are therefore not generalisable.

中风患者的伦理途径——一项后续研究。
目的:分析脑卒中患者在脑卒中后前三个月的道德途径。在新的伦理途径概念中,尊严、隐私和自主被认为是伦理途径的维度,而该途径说明了它们在中风后时间的潜在变化。此外,感兴趣的焦点是感知到的价值实现是否与症状、功能减弱、社会环境和自我赋权等生活情境因素有关。方法论设计和论证:采用描述性相关设计的后续研究来捕捉感知价值实现的变化。伦理问题和批准:该研究遵循了涉及人类参与者的研究的伦理原则。该研究得到了该大学伦理委员会和一所遵循国家标准的大学医院的批准。进行这项研究的许可是从大学医院获得的。研究方法和仪器:数据收集自中风发作后的IwS和3 卒中后数月,使用卒中患者的道德途径工具和背景问题,并进行统计学分析。结果:36名参与者在两个测量点完成了问卷调查。检测到伦理途径的多样性。IwS的尊严感下降,自主性增强。隐私没有发生重大变化。在生活情境因素中,IwS感知到的症状较少,功能减弱,自我赋权更强,而社会环境则被感知为相当稳定。在道德途径的维度和生活情境因素之间只发现了一个关联:自主性与卫生保健专业人员的社会环境呈低负相关。结论和研究局限性:研究结果为伦理途径的动态性质提供了初步证据。对大多数参与者来说,道德途径尚未完全实现,需要在医疗保健方面给予特别关注和改进。样本量较小,因此结果不具有普遍性。
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来源期刊
CiteScore
4.60
自引率
5.30%
发文量
71
期刊介绍: Scandinavian Journal of Caring Sciences is an established quarterly, peer reviewed Journal with an outstanding international reputation. As the official publication of the Nordic College of Caring Science, the Journal shares their mission to contribute to the development and advancement of scientific knowledge on caring related to health, well-being, illness and the alleviation of human suffering. The emphasis is on research that has a patient, family and community focus and which promotes an interdisciplinary team approach. Of special interest are scholarly articles addressing and initiating dialogue on theoretical, empirical and methodological concerns related to critical issues. All articles are expected to demonstrate respect for human dignity and accountability to society. In addition to original research the Journal also publishes reviews, meta-syntheses and meta-analyses.
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