Public Trust and Trustworthiness in Biobanking: The Need for More Reflexivity.

IF 1.2 4区生物学 Q4 CELL BIOLOGY

Biopreservation and Biobanking Pub Date : 2022-06-01 Epub Date: 2022-02-16 DOI:10.1089/bio.2021.0109

Gabrielle Samuel, Reinder Broekstra, Felix Gille, Anneke Lucassen

引用次数: 5

Abstract

Low levels of public trust in biobanks are perceived to be a deterrent to participation and a threat to their sustainability. Acting in a "trustworthy" manner is seen to be one approach to ensuring public trust in biobanks. Striving to improve public trust in biobanks and prioritizing the need for institutional trustworthiness are both vital endeavors. However, there has been little discussion in the context of biobanking about the meaning of these two concepts, and the relationship between them. In this article, we argue that it is important to examine this, to ensure clarity around their meaning, as well as their relationship with each other as they apply to biobanking. We conclude by making a series of recommendations for biobanks.

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生物银行的公众信任和可信赖性:需要更多的反思。

公众对生物银行的信任度较低被认为是对参与的一种威慑，并对其可持续性构成威胁。以“值得信赖”的方式行事被视为确保公众对生物银行信任的一种方法。努力提高公众对生物银行的信任和优先考虑机构可信度的需要都是至关重要的努力。然而，在生物银行的背景下，关于这两个概念的含义以及它们之间的关系的讨论很少。在本文中，我们认为检查这一点很重要，以确保它们的含义清晰，以及它们在应用于生物银行时彼此之间的关系。最后，我们对生物银行提出了一系列建议。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Biopreservation and Biobanking CELL BIOLOGY-MEDICAL LABORATORY TECHNOLOGY

CiteScore

3.30

自引率

12.50%

发文量

114

审稿时长

6-12 weeks

期刊介绍： Biopreservation and Biobanking is the first journal to provide a unifying forum for the peer-reviewed communication of recent advances in the emerging and evolving field of biospecimen procurement, processing, preservation and banking, distribution, and use. The Journal publishes a range of original articles focusing on current challenges and problems in biopreservation, and advances in methods to address these issues related to the processing of macromolecules, cells, and tissues for research. In a new section dedicated to Emerging Markets and Technologies, the Journal highlights the emergence of new markets and technologies that are either adopting or disrupting the biobank framework as they imprint on society. The solutions presented here are anticipated to help drive innovation within the biobank community. Biopreservation and Biobanking also explores the ethical, legal, and societal considerations surrounding biobanking and biorepository operation. Ideas and practical solutions relevant to improved quality, efficiency, and sustainability of repositories, and relating to their management, operation and oversight are discussed as well.