Owen Garrick, Ruben Mesa, Andrea Ferris, Edward S Kim, Edith Mitchell, Otis W Brawley, John Carpten, Keith D Carter, Joseph Coney, Robert Winn, Stephanie Monroe, Fabian Sandoval, Edith Perez, Mitzi Williams, Evan Grove, Quita Highsmith, Nicole Richie, Susan M Begelman, Asha S Collins, Jamie Freedman, Melissa S Gonzales, Gerren Wilson
{"title":"Advancing Inclusive Research: Establishing Collaborative Strategies to Improve Diversity in Clinical Trials.","authors":"Owen Garrick, Ruben Mesa, Andrea Ferris, Edward S Kim, Edith Mitchell, Otis W Brawley, John Carpten, Keith D Carter, Joseph Coney, Robert Winn, Stephanie Monroe, Fabian Sandoval, Edith Perez, Mitzi Williams, Evan Grove, Quita Highsmith, Nicole Richie, Susan M Begelman, Asha S Collins, Jamie Freedman, Melissa S Gonzales, Gerren Wilson","doi":"10.18865/ed.32.1.61","DOIUrl":null,"url":null,"abstract":"<p><p>Well-characterized disparities in clinical research have disproportionately affected patients of color, particularly in underserved communities. To tackle these barriers, Genentech formed the External Council for Advancing Inclusive Research, a 14-person committee dedicated to developing strategies to increase clinical research participation. To help improve the recruitment and retention of patients of color, this article chronicles our efforts to tangibly address the clinical research barriers at the system, study, and patient levels over the last four years. These efforts are one of the initial steps to fully realize the promise of personalized health care and provide increased patient benefit at less cost to society. Instead of simply acknowledging the problem, here we illuminate the collaborative and multilevel strategies that have been effective in delivering meaningful progress for patients.</p>","PeriodicalId":50495,"journal":{"name":"Ethnicity & Disease","volume":"32 1","pages":"61-68"},"PeriodicalIF":3.4000,"publicationDate":"2022-01-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8785867/pdf/ethndis-32-61.pdf","citationCount":"5","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Ethnicity & Disease","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.18865/ed.32.1.61","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2022/1/1 0:00:00","PubModel":"eCollection","JCR":"Q1","JCRName":"PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH","Score":null,"Total":0}
引用次数: 5
Abstract
Well-characterized disparities in clinical research have disproportionately affected patients of color, particularly in underserved communities. To tackle these barriers, Genentech formed the External Council for Advancing Inclusive Research, a 14-person committee dedicated to developing strategies to increase clinical research participation. To help improve the recruitment and retention of patients of color, this article chronicles our efforts to tangibly address the clinical research barriers at the system, study, and patient levels over the last four years. These efforts are one of the initial steps to fully realize the promise of personalized health care and provide increased patient benefit at less cost to society. Instead of simply acknowledging the problem, here we illuminate the collaborative and multilevel strategies that have been effective in delivering meaningful progress for patients.
期刊介绍:
Ethnicity & Disease is an international journal that exclusively publishes information on the causal and associative relationships in the etiology of common illnesses through the study of ethnic patterns of disease. Topics focus on: ethnic differentials in disease rates;impact of migration on health status; social and ethnic factors related to health care access and health; and metabolic epidemiology. A major priority of the journal is to provide a forum for exchange between the United States and the developing countries of Europe, Africa, Asia, and Latin America.