Good enough? Parental decisions to use DIY looping technology to manage type 1 diabetes in children.

IF 1.6 Q2 ETHICS
Monash Bioethics Review Pub Date : 2021-12-01 Epub Date: 2021-08-16 DOI:10.1007/s40592-021-00133-5
Carolyn Johnston
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引用次数: 1

Abstract

People are using innovative internet of things technologies to gain individualised management of their type 1 diabetes. The #WeAreNotWaiting movement supports them to build their own hybrid closed loop systems and access their real time blood sugar data via any web connected device. A small number of parents in Australia use such DIY looping systems to manage their child's type 1 diabetes, but these systems have not been approved by the Therapeutic Goods Administration in Australia, creating ethical dilemmas for clinicians about how to respond to the use of medical devices that are not registered on the Australian Register of Therapeutic Goods. This article considers whether the use of DIY looping is in the best interests of the child and, if not, whether intervention in parental decision making is justified to prevent harm to the child. It addresses the ongoing duty of healthcare professionals to provide care to children who are 'looping.' Reference is made to findings from a study, Personalised Closed Loop Systems for Childhood Diabetes, to illustrate stakeholders' perceptions of benefits and harms of DIY looping systems. I conclude that the decision of parents to use DIY looping technology could be considered to be in a child's best interests, broadly defined, and falls within the Zone of Parental Discretion, however healthcare practitioners who support parents may have professional concerns in doing so.

足够好?父母决定使用DIY循环技术来管理儿童1型糖尿病。
人们正在使用创新的物联网技术来获得对1型糖尿病的个性化管理。#我们不等待运动支持他们建立自己的混合闭环系统,并通过任何联网设备访问他们的实时血糖数据。澳大利亚有一小部分家长使用这种DIY循环系统来管理孩子的1型糖尿病,但这些系统尚未得到澳大利亚治疗用品管理局的批准,这给临床医生带来了伦理困境,即如何应对未在澳大利亚治疗用品登记处注册的医疗设备的使用。本文考虑使用DIY循环是否符合儿童的最大利益,如果不是,是否有理由干预父母的决策,以防止对儿童的伤害。它解决了医疗保健专业人员为“循环”儿童提供护理的持续责任。参考了一项名为“儿童糖尿病个性化闭环系统”的研究结果,以说明利益相关者对DIY循环系统的利与弊的看法。我的结论是,父母使用DIY循环技术的决定可以被认为是符合孩子的最大利益的,广义上讲,属于父母自由裁量权的范围,然而,支持父母的医疗保健从业人员在这样做时可能有专业上的考虑。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
CiteScore
2.70
自引率
6.20%
发文量
16
期刊介绍: Monash Bioethics Review provides comprehensive coverage of traditional topics and emerging issues in bioethics. The Journal is especially concerned with empirically-informed philosophical bioethical analysis with policy relevance. Monash Bioethics Review also regularly publishes empirical studies providing explicit ethical analysis and/or with significant ethical or policy implications. Produced by the Monash University Centre for Human Bioethics since 1981 (originally as Bioethics News), Monash Bioethics Review is the oldest peer reviewed bioethics journal based in Australia–and one of the oldest bioethics journals in the world. An international forum for empirically-informed philosophical bioethical analysis with policy relevance. Includes empirical studies providing explicit ethical analysis and/or with significant ethical or policy implications. One of the oldest bioethics journals, produced by a world-leading bioethics centre. Publishes papers up to 13,000 words in length. Unique New Feature: All Articles Open for Commentary
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