Looking back, looking forward: Methodological challenges and future directions in research on persons with profound intellectual and multiple disabilities.

Journal of applied research in intellectual disabilities : JARID Pub Date : 2021-01-01 Epub Date: 2020-10-18 DOI:10.1111/jar.12803

Bea Maes, Sara Nijs, Sien Vandesande, Ines Van Keer, Michael Arthur-Kelly, Juliane Dind, Juliet Goldbart, Geneviève Petitpierre, Annette Van der Putten

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引用次数: 40

Abstract

Background: Within the context of the Special Interest Research Group (SIRG) on Persons with Profound Intellectual and Multiple Disabilities (PIMD), researchers often discuss the methodological problems and challenges they are confronted with. The aim of the current article was to give an overview of these challenges.

Methods: The challenges are centred on six topics. These reflect the main components of a study's design: (a) participant demarcation, (b) participant recruitment, (c) data collection and instruments, (d) data analysis, (e) ethics/including the "voice" of persons with PIMD and (f) theoretical models.

Results: Next, to describing the specific challenges, possible solutions and pathways to address them are discussed. These are illustrated by recent studies by the authors and other researchers in the field.

Conclusions: The current contribution wants to stimulate further discussion and exchange of ideas, and the development of creative research techniques.

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回顾与展望:深度智障与多重智障研究的方法论挑战与未来方向。

背景:在深度智力和多重残疾人士(PIMD)特殊兴趣研究小组(sisig)的背景下，研究人员经常讨论他们面临的方法问题和挑战。本文的目的是概述这些挑战。方法:挑战集中在六个主题上。这些反映了研究设计的主要组成部分:(a)参与者划分，(b)参与者招募，(c)数据收集和工具，(d)数据分析，(e)道德/包括PIMD患者的“声音”和(f)理论模型。结果:接下来，描述具体的挑战，可能的解决方案和途径，以解决这些问题进行了讨论。作者和该领域的其他研究人员最近的研究证明了这一点。结论:当前的贡献旨在促进进一步的讨论和思想交流，以及创造性研究技术的发展。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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Journal of applied research in intellectual disabilities : JARID

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