Challenges Experienced by Parents of Emerging Young Adults With Type 1 Diabetes Mellitus During the Transition to College.

IF 3.9 Q1 Health Professions

Diabetes Educator Pub Date : 2020-10-01 Epub Date: 2020-07-31 DOI:10.1177/0145721720943120

Michelle M Ness, Jennifer L Saylor, Xiaopeng Ji, Ann Bell, Barbara Habermann

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引用次数: 1

Abstract

Purpose: The purpose of this study is to gain a deeper understanding of the challenges experienced by parents of emerging young adults (EYAs) with type 1 diabetes mellitus (T1DM) who completed their freshman or sophomore year of college.

Methods: Using a descriptive, qualitative design, 16 parents participated in semistructured interviews that explored factors impacting the college transition for parents of college freshmen and sophomores with T1DM. Participants were recruited from local endocrinology clinics as well as the College Diabetes Network (CDN) Parent Facebook page, the CDN Facebook page, the CDN Twitter feed, and the Delaware Chapter of the JDRF (formerly Juvenile Diabetes Research Foundation). Researchers used a thematic analysis to analyze the data and develop categories. Interviews were conducted and recorded via video conferencing from July 2019 to September 2019.

Results: Results represent data from 16 interviews comprising 15 (94%) mothers and 1 father. Thematic analysis resulted in the emergence of 3 themes: managing parental concerns, changes in the parental role, and identifying sources of parental support. Parents identified several challenges including the EYAs' ability to manage T1DM at college, communication with the EYA, and the availability of support for parents.

Conclusion: Parents experience several challenges during their EYA's transition to college with T1DM. Supporting the needs of parents and EYAs during this time may serve to reduce diabetes-related complications for EYAs and increase overall quality of life for both members of the dyad.

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新出现的1型糖尿病年轻人的父母在过渡到大学期间所经历的挑战。

目的:本研究的目的是为了更深入地了解1型糖尿病(T1DM)新生青年(EYAs)在大学一年级或二年级时的父母所面临的挑战。方法:采用描述性定性设计，对16名T1DM学生家长进行半结构化访谈，探讨影响T1DM学生家长转学的因素。参与者从当地内分泌诊所、大学糖尿病网络(CDN)家长Facebook页面、CDN Facebook页面、CDN Twitter feed和JDRF(前身为青少年糖尿病研究基金会)特拉华州分会招募。研究人员使用主题分析来分析数据并制定类别。采访于2019年7月至2019年9月通过视频会议进行并录制。结果:结果代表16个访谈的数据，包括15个(94%)母亲和1个父亲。主题分析产生了3个主题:管理父母关注的问题，父母角色的变化，以及确定父母支持的来源。家长们发现了一些挑战，包括EYA在大学管理T1DM的能力，与EYA的沟通，以及对家长的支持。结论:患有T1DM的家长在EYA过渡到大学期间经历了一些挑战。在此期间，支持父母和EYAs的需求可能有助于减少EYAs的糖尿病相关并发症，并提高二人组成员的整体生活质量。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Diabetes Educator 医学-内分泌学与代谢

CiteScore

4.00

自引率

0.00%

发文量

审稿时长

6-12 weeks

期刊介绍： The Diabetes Educator (TDE) is the official journal of the American Association of Diabetes Educators (AADE). It is a peer-reviewed journal intended to serve as a reference source for the science and art of diabetes management. TDE publishes original articles that relate to aspects of patient care and education, clinical practice and/or research, and the multidisciplinary profession of diabetes education as represented by nurses, dietitians, physicians, pharmacists, mental health professionals, podiatrists, and exercise physiologists.