A Collaborative Approach: Care Staff and Families Working Together to Safeguard the Quality of Life of Residents Living With Advanced Dementia.

IF 2.6 Q2 CLINICAL NEUROLOGY

Journal of Central Nervous System Disease Pub Date : 2019-05-13 eCollection Date: 2019-01-01 DOI:10.1177/1179573519843872

Sian Ellen Hughes, Bob Woods, Katherine Algar-Skaife, Hannah Jelley, Catrin Hedd Jones

{"title":"A Collaborative Approach: Care Staff and Families Working Together to Safeguard the Quality of Life of Residents Living With Advanced Dementia.","authors":"Sian Ellen Hughes, Bob Woods, Katherine Algar-Skaife, Hannah Jelley, Catrin Hedd Jones","doi":"10.1177/1179573519843872","DOIUrl":null,"url":null,"abstract":"Objectives: This study aimed to explore the quality of life and well-being of care home residents living with advanced dementia, how personalised care can be achieved where the person is completely dependent on others for care and how individuals' choices and human rights were upheld.Methods: The study design used a qualitative approach, with data collected through in-depth, semi-structured interviews with 8 family members, all of whom visited daily, and 8 care staff.Results: Emerging themes highlighted the importance of family involvement, signs of well-being, communication and the valued role of direct care staff.Discussion: Participants were able to identify factors of residents' well-being in residents living with advanced dementia. Family members who visited daily saw themselves working collaboratively with care staff to maintain the quality of life of their relatives and engage in proxy decision making. Regarding human rights, the emphasis was on avoiding abuse, rather than promoting well-being.","PeriodicalId":15218,"journal":{"name":"Journal of Central Nervous System Disease","volume":"11 ","pages":"1179573519843872"},"PeriodicalIF":2.6000,"publicationDate":"2019-05-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/1179573519843872","citationCount":"6","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Central Nervous System Disease","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1177/1179573519843872","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2019/1/1 0:00:00","PubModel":"eCollection","JCR":"Q2","JCRName":"CLINICAL NEUROLOGY","Score":null,"Total":0}

引用次数: 6

Abstract

Objectives: This study aimed to explore the quality of life and well-being of care home residents living with advanced dementia, how personalised care can be achieved where the person is completely dependent on others for care and how individuals' choices and human rights were upheld.

Methods: The study design used a qualitative approach, with data collected through in-depth, semi-structured interviews with 8 family members, all of whom visited daily, and 8 care staff.

Results: Emerging themes highlighted the importance of family involvement, signs of well-being, communication and the valued role of direct care staff.

Discussion: Participants were able to identify factors of residents' well-being in residents living with advanced dementia. Family members who visited daily saw themselves working collaboratively with care staff to maintain the quality of life of their relatives and engage in proxy decision making. Regarding human rights, the emphasis was on avoiding abuse, rather than promoting well-being.

Abstract Image

查看原文本刊更多论文

合作方法:护理人员和家庭共同努力，保障老年痴呆症患者的生活质量。

目的:本研究旨在探讨老年痴呆症患者的生活质量和福祉，如何在患者完全依赖他人照顾的情况下实现个性化护理，以及如何维护个人的选择和人权。方法:研究设计采用定性方法，通过对8名每日来访的家庭成员和8名护理人员进行深入、半结构化访谈收集数据。结果:新出现的主题强调了家庭参与的重要性，幸福的迹象，沟通和直接护理人员的重要作用。讨论:参与者能够识别患有晚期痴呆症的居民的健康因素。每天来访的家庭成员看到自己与护理人员合作，以维持亲属的生活质量，并参与代理决策。关于人权，重点是避免虐待，而不是促进福利。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

求助全文

约1分钟内获得全文求助全文

来源期刊

Journal of Central Nervous System Disease CLINICAL NEUROLOGY-

CiteScore

6.90

自引率

0.00%

发文量

审稿时长

8 weeks