[The transitional care from pediatrics to adult medicine within the rare autoimmune and autoinflammatory diseases network].

Medecine sciences : M/S Pub Date : 2022-08-01 Epub Date: 2022-09-12 DOI:10.1051/medsci/2022107
Muriel Herasse, Mélanie Romier, Véronique Hentgen, Agnès Duquesne, Jean-Paul Larbre, Hélène Maillard, Micheline Pha, Pascal Pillet, Héloïse Reumaux, Marie-Elise Truchetet, Sophie Georgin-Lavialle, Alexandre Belot
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Abstract

The committee involved in transitional care within the French network on rare autoimmune and auto-inflammatory diseases has developed tools and published recommendations for the care during the transition of adolescents and young adults suffering from these chronic diseases which often demonstrate flares. As the challenge is the compliance to the continuation of care in the adult world, the therapeutic alliance between the young patient and his/her pediatrician and then his/her adult doctor is particularly important. The working group thus carried out a survey on how doctors and young patients perceive their relationship during the period of transition in medical supervision.

【罕见自身免疫性和自身炎症性疾病网络中从儿科到成人医学的过渡护理】。
法国罕见自身免疫性疾病和自身炎症性疾病网络内参与过渡性护理的委员会开发了工具并发表了建议,用于患有这些经常表现为急性发作的慢性疾病的青少年和青壮年的过渡期护理。由于挑战是在成人世界中对继续护理的依从性,因此年轻患者与他/她的儿科医生以及他/她的成人医生之间的治疗联盟尤为重要。因此,工作组就医生和年轻病人如何看待他们在医疗监督过渡时期的关系进行了调查。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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