{"title":"Maternal adaptation to caring for a child with congenital Zika virus syndrome.","authors":"Laís Celeste Medeiros Mendes da Fonseca, Fernanda Machado Silva-Rodrigues, Natália Maria Vieira Pereira-Caldeira, Aline Cristiane Cavicchioli Okido, Lucila Castanheira Nascimento, Diene Monique Carlos, Flávia Azevedo Gomes-Sponholz, Nayara Gonçalves Barbosa","doi":"10.1590/0034-7167-2025-0475","DOIUrl":null,"url":null,"abstract":"<p><strong>Objective: </strong>to understand the process of maternal adaptation to caring for a child with Congenital Zika Virus Syndrome.</p><p><strong>Methods: </strong>a descriptive, qualitative study grounded in Roy's Adaptation Model. Twenty mothers who care for children with this syndrome, from different Brazilian states, were interviewed remotely between January and October 2024. The data were subjected to reflexive thematic analysis.</p><p><strong>Results: </strong>The mothers experienced challenges related to the diagnosis, the grief for the idealized child, and the adaptation to a new reality. The adaptive modes highlighted physical and emotional overload, the reorganization of self-concept and role performance, and the fragility of support networks.</p><p><strong>Final considerations: </strong>The findings reinforce the need for professional support and intersectoral strategies that expand assistance to mothers, promoting psychosocial care, social inclusion, and access to specialized services.</p>","PeriodicalId":21200,"journal":{"name":"Revista Brasileira De Enfermagem","volume":"79 ","pages":"e20250475"},"PeriodicalIF":1.2000,"publicationDate":"2026-10-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13679172/pdf/","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Revista Brasileira De Enfermagem","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1590/0034-7167-2025-0475","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2026/1/1 0:00:00","PubModel":"eCollection","JCR":"Q3","JCRName":"NURSING","Score":null,"Total":0}
引用次数: 0
Abstract
Objective: to understand the process of maternal adaptation to caring for a child with Congenital Zika Virus Syndrome.
Methods: a descriptive, qualitative study grounded in Roy's Adaptation Model. Twenty mothers who care for children with this syndrome, from different Brazilian states, were interviewed remotely between January and October 2024. The data were subjected to reflexive thematic analysis.
Results: The mothers experienced challenges related to the diagnosis, the grief for the idealized child, and the adaptation to a new reality. The adaptive modes highlighted physical and emotional overload, the reorganization of self-concept and role performance, and the fragility of support networks.
Final considerations: The findings reinforce the need for professional support and intersectoral strategies that expand assistance to mothers, promoting psychosocial care, social inclusion, and access to specialized services.
期刊介绍：
The Revista Brasileira de Enfermagem created in 1932, March 20 is the official publication of the Associação Brasileira de Enfermagem (Brazilian Nursing Association) has as purpose to disseminate the scientific production from different nursing interest areas of knowledge, including those which express the political project of the Association. The Revista Brasileira de Enfermagem is the oldest journal of the Brazilian nursing. Its first title was "Annaes de Enfermagem" from 1932 to 1941, being entitled Anais de Enfermagem" until 1955, when its title was changed to the current.
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