A Comprehensive Toolkit to Support Self-Report Questionnaires for Autistic Adults With Cognitive Disability

IF 2.2 3区医学 Q2 PSYCHOLOGY, EDUCATIONAL

Journal of Applied Research in Intellectual Disabilities Pub Date : 2026-10-14 DOI:10.1111/jar.70316

Vicky Caron, Isabelle Courcy, Isabelle Soulières

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引用次数: 0

Abstract

Objectives

Autistic individuals with cognitive disability are underrepresented in research using self-report measures. This study aimed to develop a toolkit of customizable accommodations to facilitate self-report and to explore its usability through implementation with quality of life (QoL) questionnaires.

Methods

A consultation process in three rounds was conducted with 10 experts in autism and/or cognitive disability to identify accommodations. The resulting accommodations were implemented with QoL questionnaires (WHOQoL-BREF-ID, WHOQoL-DIS-ID, ASQoL). Twenty-two autistic participants with cognitive disability, accompanied by a parent, completed the questionnaires. Feedback interviews explored participants' experiences with the accommodations.

Results

Sixty-four accommodations and a cross-cutting concern: the need for a flexible protocol were retained in the toolkit. Feedback supported the usefulness of several accommodations while highlighting areas for improvement.

Conclusions

This toolkit facilitates self-report among autistic individuals with cognitive disabilities, which is crucial for valid QoL assessments and development of relevant services.

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来源期刊

Journal of Applied Research in Intellectual Disabilities Multiple-

CiteScore

4.70

自引率

12.50%

发文量

期刊介绍： JARID is an international, peer-reviewed journal which draws together findings derived from original applied research in intellectual disabilities. The journal is an important forum for the dissemination of ideas to promote valued lifestyles for people with intellectual disabilities. It reports on research from the UK and overseas by authors from all relevant professional disciplines. It is aimed at an international, multi-disciplinary readership. Topics covered include community living, quality of life, challenging behaviour, communication, sexuality, medication, ageing, supported employment, family issues, mental health, physical health, autism, economic issues, social networks, staff stress, staff training, epidemiology and service provision.