Commentary: A Neurodiversity-Affirming Framework for Evaluating Autism Support Research.

IF 5.7 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL
Autism Pub Date : 2026-10-14 DOI:10.1177/13623613261489842
Phoebe Jordan, Jessica Tupou, Matt Hammond, Mirko Uljarević, Lee Patrick, Hannah Waddington
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引用次数: 0

Abstract

Despite growing interest in neurodiversity-affirming research, many studies examining interventions, practices, or services designed to support autistic individuals in daily life and well-being still prioritise reducing autistic traits over well-being and autonomy. However, there are currently no universally accepted definitions or frameworks for appraising the extent to which specific support programmes align with neurodiversity-affirming principles. This commentary introduces a five-principle framework developed through systematic appraisal of the literature and collaboration with autistic, clinical and academic contributors. The framework assesses the following aspects of autism support studies: (a) strengths-based focus, (b) support for self-determination and autonomy, (c) adaptation of the environment and upskilling others, (d) diverse communication methods and (e) respect for sensory and processing differences. This preliminary framework may offer a transparent method for evaluating alignment with principles drawn from neurodiversity scholarship and social/interactional models of disability and guiding ethical, inclusive practice. Potential applications include its use in reviews or training to support research and practice that centre autistic quality of life.Lay AbstractMany autism studies focus on changing autistic behaviours. However, autistic people and researchers have increasingly called for approaches that support well-being, quality of life and acceptance of autistic differences. Currently, there is no clear way to assess whether autism research follows these ideas. This commentary presents a framework for evaluating autism support research. The framework examines whether studies focus on strengths, support independence and choice, adapt environments to meet people's needs, recognise different ways of communicating and respect sensory differences. The framework was developed using existing research and feedback from autistic people, clinicians and researchers. It can help researchers identify studies that align with neurodiversity-affirming values and encourage more supportive and inclusive autism research in the future.

评论:评估自闭症支持研究的神经多样性肯定框架。
尽管人们对肯定神经多样性的研究越来越感兴趣,但许多旨在支持自闭症患者日常生活和健康的干预、实践或服务的研究仍然优先考虑减少自闭症特征,而不是健康和自主。然而,目前还没有普遍接受的定义或框架来评估具体支持方案在多大程度上符合神经多样性确认原则。这篇评论介绍了一个五原则框架,通过系统地评估文献和与自闭症、临床和学术贡献者的合作而开发。该框架评估了自闭症支持研究的以下方面:(a)基于优势的关注,(b)对自决和自主的支持,(c)适应环境和提高他人的技能,(d)多样化的沟通方法,(e)尊重感觉和处理差异。这个初步框架可以提供一个透明的方法来评估与神经多样性奖学金和残疾的社会/互动模型的原则的一致性,并指导道德的、包容性的实践。潜在的应用包括在评论或培训中使用,以支持研究和实践,以提高自闭症患者的生活质量。许多自闭症研究关注于自闭症行为的改变。然而,自闭症患者和研究人员越来越多地呼吁采取支持幸福、生活质量和接受自闭症差异的方法。目前,还没有明确的方法来评估自闭症研究是否遵循这些观点。这篇评论提出了一个评估自闭症支持研究的框架。该框架检查了研究是否关注优势、支持独立和选择、适应环境以满足人们的需求、认识到不同的沟通方式并尊重感官差异。该框架是根据现有研究和自闭症患者、临床医生和研究人员的反馈制定的。它可以帮助研究人员确定符合神经多样性肯定价值观的研究,并鼓励未来更多的支持性和包容性自闭症研究。
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来源期刊
Autism
Autism PSYCHOLOGY, DEVELOPMENTAL-
CiteScore
9.80
自引率
11.50%
发文量
160
期刊介绍: Autism is a major, peer-reviewed, international journal, published 8 times a year, publishing research of direct and practical relevance to help improve the quality of life for individuals with autism or autism-related disorders. It is interdisciplinary in nature, focusing on research in many areas, including: intervention; diagnosis; training; education; translational issues related to neuroscience, medical and genetic issues of practical import; psychological processes; evaluation of particular therapies; quality of life; family needs; and epidemiological research. Autism provides a major international forum for peer-reviewed research of direct and practical relevance to improving the quality of life for individuals with autism or autism-related disorders. The journal''s success and popularity reflect the recent worldwide growth in the research and understanding of autistic spectrum disorders, and the consequent impact on the provision of treatment and care. Autism is interdisciplinary in nature, focusing on evaluative research in all areas, including: intervention, diagnosis, training, education, neuroscience, psychological processes, evaluation of particular therapies, quality of life issues, family issues and family services, medical and genetic issues, epidemiological research.
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