Phoebe Jordan, Jessica Tupou, Matt Hammond, Mirko Uljarević, Lee Patrick, Hannah Waddington
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引用次数: 0
Abstract
Despite growing interest in neurodiversity-affirming research, many studies examining interventions, practices, or services designed to support autistic individuals in daily life and well-being still prioritise reducing autistic traits over well-being and autonomy. However, there are currently no universally accepted definitions or frameworks for appraising the extent to which specific support programmes align with neurodiversity-affirming principles. This commentary introduces a five-principle framework developed through systematic appraisal of the literature and collaboration with autistic, clinical and academic contributors. The framework assesses the following aspects of autism support studies: (a) strengths-based focus, (b) support for self-determination and autonomy, (c) adaptation of the environment and upskilling others, (d) diverse communication methods and (e) respect for sensory and processing differences. This preliminary framework may offer a transparent method for evaluating alignment with principles drawn from neurodiversity scholarship and social/interactional models of disability and guiding ethical, inclusive practice. Potential applications include its use in reviews or training to support research and practice that centre autistic quality of life.Lay AbstractMany autism studies focus on changing autistic behaviours. However, autistic people and researchers have increasingly called for approaches that support well-being, quality of life and acceptance of autistic differences. Currently, there is no clear way to assess whether autism research follows these ideas. This commentary presents a framework for evaluating autism support research. The framework examines whether studies focus on strengths, support independence and choice, adapt environments to meet people's needs, recognise different ways of communicating and respect sensory differences. The framework was developed using existing research and feedback from autistic people, clinicians and researchers. It can help researchers identify studies that align with neurodiversity-affirming values and encourage more supportive and inclusive autism research in the future.
期刊介绍:
Autism is a major, peer-reviewed, international journal, published 8 times a year, publishing research of direct and practical relevance to help improve the quality of life for individuals with autism or autism-related disorders. It is interdisciplinary in nature, focusing on research in many areas, including: intervention; diagnosis; training; education; translational issues related to neuroscience, medical and genetic issues of practical import; psychological processes; evaluation of particular therapies; quality of life; family needs; and epidemiological research. Autism provides a major international forum for peer-reviewed research of direct and practical relevance to improving the quality of life for individuals with autism or autism-related disorders. The journal''s success and popularity reflect the recent worldwide growth in the research and understanding of autistic spectrum disorders, and the consequent impact on the provision of treatment and care. Autism is interdisciplinary in nature, focusing on evaluative research in all areas, including: intervention, diagnosis, training, education, neuroscience, psychological processes, evaluation of particular therapies, quality of life issues, family issues and family services, medical and genetic issues, epidemiological research.