Engaging With a Participatory Research Team: Evaluation of Involving Older Co-Researchers With Experience of Falls in the SeFallED Project.

IF 3.4 3区医学 Q2 HEALTH CARE SCIENCES & SERVICES

Health Expectations Pub Date : 2026-10-01 DOI:10.1111/hex.70908

Nadja Reeck, Tim Stuckenschneider, Laura Himmelmann, Georg Lehmann, Margarethe Mammes, Margrit Pape, Bettina Reineking, Tania Zieschang, Anna Levke Brütt

{"title":"Engaging With a Participatory Research Team: Evaluation of Involving Older Co-Researchers With Experience of Falls in the SeFallED Project.","authors":"Nadja Reeck, Tim Stuckenschneider, Laura Himmelmann, Georg Lehmann, Margarethe Mammes, Margrit Pape, Bettina Reineking, Tania Zieschang, Anna Levke Brütt","doi":"10.1111/hex.70908","DOIUrl":null,"url":null,"abstract":"Introduction: There is increasing emphasis on the involvement of older patients in research. A comprehensive and systematic evaluation of this involvement, using established tools, is essential to ensure its effectiveness and impact. This study aims to describe this involvement of older individuals in a geriatric research project and to examine its outcome and impact.Methods: A participatory research team (PRT) consisting of a heterogeneous group of older adults with experience of falls was set up. The public and patient engagement evaluation tool (PPEET) was used as a means of evaluation. Process documentation was also used for evaluation. All data were analysed descriptively.Results: Eight older individuals were selected for the PRT, and 29 meetings were held during the 3-year project period. Due to health-related absences, three new PRT members were admitted after the first half of the project. The positive atmosphere at the meetings was emphasised. Nevertheless, at the initial stage, there was some ambiguity regarding the purpose. The PRT had an influence on various research phases (e.g., design of the focus groups). All persons involved emphasised the supportive contextual factors, but in the beginning PRT members highlighted the need for more information.Conclusion: The PRT is a promising strategy for involving older people; however, health-related absences must be considered. A personal approach is a crucial factor for PRT members (e.g., time in meetings to share own experiences). The PRT had a multifaceted influence on the project, with a heightened emphasis on public relations. The contextual factors (e.g., infrastructure) were supportive, but greater emphasis should be placed on information structures for PRT members in future projects.Patient or public contribution: A PRT consisting of a heterogeneous group of older individuals with a history of falls was involved throughout the entire project duration. All four members who were part of the PRT at the end of the project read and revised this paper.Trial registration: German clinical trial identifier: DRKS00025949.","PeriodicalId":55070,"journal":{"name":"Health Expectations","volume":"29 5","pages":"e70908"},"PeriodicalIF":3.4000,"publicationDate":"2026-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13655765/pdf/","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Health Expectations","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1111/hex.70908","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"HEALTH CARE SCIENCES & SERVICES","Score":null,"Total":0}

引用次数: 0

Abstract

Introduction: There is increasing emphasis on the involvement of older patients in research. A comprehensive and systematic evaluation of this involvement, using established tools, is essential to ensure its effectiveness and impact. This study aims to describe this involvement of older individuals in a geriatric research project and to examine its outcome and impact.

Methods: A participatory research team (PRT) consisting of a heterogeneous group of older adults with experience of falls was set up. The public and patient engagement evaluation tool (PPEET) was used as a means of evaluation. Process documentation was also used for evaluation. All data were analysed descriptively.

Results: Eight older individuals were selected for the PRT, and 29 meetings were held during the 3-year project period. Due to health-related absences, three new PRT members were admitted after the first half of the project. The positive atmosphere at the meetings was emphasised. Nevertheless, at the initial stage, there was some ambiguity regarding the purpose. The PRT had an influence on various research phases (e.g., design of the focus groups). All persons involved emphasised the supportive contextual factors, but in the beginning PRT members highlighted the need for more information.

Conclusion: The PRT is a promising strategy for involving older people; however, health-related absences must be considered. A personal approach is a crucial factor for PRT members (e.g., time in meetings to share own experiences). The PRT had a multifaceted influence on the project, with a heightened emphasis on public relations. The contextual factors (e.g., infrastructure) were supportive, but greater emphasis should be placed on information structures for PRT members in future projects.

Patient or public contribution: A PRT consisting of a heterogeneous group of older individuals with a history of falls was involved throughout the entire project duration. All four members who were part of the PRT at the end of the project read and revised this paper.

Trial registration: German clinical trial identifier: DRKS00025949.

查看原文本刊更多论文

与参与式研究团队合作：评估在SeFallED项目中涉及有跌倒经验的老年合作研究人员。

引言：老年患者在研究中的参与越来越受到重视。利用既定工具对这种参与进行全面和系统的评价，对于确保其有效性和影响至关重要。本研究旨在描述老年人参与老年研究项目，并检查其结果和影响。方法：建立了一个参与式研究小组（PRT），由一组有跌倒经历的老年人组成。采用公众与患者参与评估工具（PPEET）作为评估手段。过程文档也用于评估。对所有数据进行描述性分析。结果：选择了8名老年人参加PRT，在3年的项目期间举行了29次会议。由于健康原因缺课，在项目的前半部分之后接纳了三名新的PRT成员。会议的积极气氛得到了强调。然而，在最初阶段，其目的有些含糊不清。PRT对各个研究阶段都有影响（例如焦点小组的设计）。所有有关人员都强调了支持性的背景因素，但在开始时，PRT成员强调需要更多的资料。结论：PRT是一种很有前途的老年人参与策略；但是，必须考虑到与健康有关的缺勤。个人方法是PRT成员的一个关键因素（例如，在会议上分享自己经验的时间）。PRT对该项目具有多方面的影响，尤其强调公共关系。环境因素（例如，基础设施）是支持性的，但是在今后的项目中应该更加强调PRT成员的信息结构。患者或公众贡献：在整个项目期间，由一组有跌倒史的老年人组成的PRT参与其中。在项目结束时，PRT的所有四名成员都阅读并修改了这篇论文。试验注册：德国临床试验标识符：DRKS00025949。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

求助全文

约1分钟内获得全文求助全文

来源期刊

Health Expectations 医学-公共卫生、环境卫生与职业卫生

CiteScore

5.20

自引率

9.40%

发文量

251

审稿时长

>12 weeks

期刊介绍： Health Expectations promotes critical thinking and informed debate about all aspects of patient and public involvement and engagement (PPIE) in health and social care, health policy and health services research including: • Person-centred care and quality improvement • Patients'' participation in decisions about disease prevention and management • Public perceptions of health services • Citizen involvement in health care policy making and priority-setting • Methods for monitoring and evaluating participation • Empowerment and consumerism • Patients'' role in safety and quality • Patient and public role in health services research • Co-production (researchers working with patients and the public) of research, health care and policy Health Expectations is a quarterly, peer-reviewed journal publishing original research, review articles and critical commentaries. It includes papers which clarify concepts, develop theories, and critically analyse and evaluate specific policies and practices. The Journal provides an inter-disciplinary and international forum in which researchers (including PPIE researchers) from a range of backgrounds and expertise can present their work to other researchers, policy-makers, health care professionals, managers, patients and consumer advocates.