Marta Fadda, Alessandra Cristaudi, Pietro Majno-Hurst, Martha Montello, Samia Hurst-Majno
{"title":"Preserving Patients' Identities: Patient Biographies Before Major Surgery.","authors":"Marta Fadda, Alessandra Cristaudi, Pietro Majno-Hurst, Martha Montello, Samia Hurst-Majno","doi":"10.1353/pbm.2026.a1002734","DOIUrl":null,"url":null,"abstract":"<p><p>Since 2019, the authors have implemented the project Knowing Each Other Better Is Better Care, inviting patients scheduled for major surgery to write short biographies to be shared with their care teams. Rooted in the recognition that a strong therapeutic alliance improves treatment outcomes and patient satisfaction, this initiative aims to enhance patient-provider connections by integrating patients' biographies into their care. Analysis of 10 biographies reveals four recurring themes: the desire to be seen as unique individuals, the need for mutual trust with health-care providers, the wish for their hopes to be understood, and gratitude for the opportunity to share their stories. These findings challenge the custom that physicians and hospital staff should rely mainly on family members to bear the moral responsibility for preserving patients' identities. Patients clearly expressed their hope that they can entrust their providers with the responsibility not only to maintain their detailed medical records, but also to hear and absorb their intimate memories, fears, and hopes. This approach has the potential to enhance both the perceived and actual quality of care, ensuring that patients feel heard, valued, and respected throughout their hospital journey.</p>","PeriodicalId":54627,"journal":{"name":"Perspectives in Biology and Medicine","volume":"69 3","pages":"353-366"},"PeriodicalIF":0.7000,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Perspectives in Biology and Medicine","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1353/pbm.2026.a1002734","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"HISTORY & PHILOSOPHY OF SCIENCE","Score":null,"Total":0}
引用次数: 0
Abstract
Since 2019, the authors have implemented the project Knowing Each Other Better Is Better Care, inviting patients scheduled for major surgery to write short biographies to be shared with their care teams. Rooted in the recognition that a strong therapeutic alliance improves treatment outcomes and patient satisfaction, this initiative aims to enhance patient-provider connections by integrating patients' biographies into their care. Analysis of 10 biographies reveals four recurring themes: the desire to be seen as unique individuals, the need for mutual trust with health-care providers, the wish for their hopes to be understood, and gratitude for the opportunity to share their stories. These findings challenge the custom that physicians and hospital staff should rely mainly on family members to bear the moral responsibility for preserving patients' identities. Patients clearly expressed their hope that they can entrust their providers with the responsibility not only to maintain their detailed medical records, but also to hear and absorb their intimate memories, fears, and hopes. This approach has the potential to enhance both the perceived and actual quality of care, ensuring that patients feel heard, valued, and respected throughout their hospital journey.
期刊介绍:
Perspectives in Biology and Medicine, an interdisciplinary scholarly journal whose readers include biologists, physicians, students, and scholars, publishes essays that place important biological or medical subjects in broader scientific, social, or humanistic contexts. These essays span a wide range of subjects, from biomedical topics such as neurobiology, genetics, and evolution, to topics in ethics, history, philosophy, and medical education and practice. The editors encourage an informal style that has literary merit and that preserves the warmth, excitement, and color of the biological and medical sciences.