Preserving Patients' Identities: Patient Biographies Before Major Surgery.

IF 0.7 4区 医学 Q2 HISTORY & PHILOSOPHY OF SCIENCE
Marta Fadda, Alessandra Cristaudi, Pietro Majno-Hurst, Martha Montello, Samia Hurst-Majno
{"title":"Preserving Patients' Identities: Patient Biographies Before Major Surgery.","authors":"Marta Fadda, Alessandra Cristaudi, Pietro Majno-Hurst, Martha Montello, Samia Hurst-Majno","doi":"10.1353/pbm.2026.a1002734","DOIUrl":null,"url":null,"abstract":"<p><p>Since 2019, the authors have implemented the project Knowing Each Other Better Is Better Care, inviting patients scheduled for major surgery to write short biographies to be shared with their care teams. Rooted in the recognition that a strong therapeutic alliance improves treatment outcomes and patient satisfaction, this initiative aims to enhance patient-provider connections by integrating patients' biographies into their care. Analysis of 10 biographies reveals four recurring themes: the desire to be seen as unique individuals, the need for mutual trust with health-care providers, the wish for their hopes to be understood, and gratitude for the opportunity to share their stories. These findings challenge the custom that physicians and hospital staff should rely mainly on family members to bear the moral responsibility for preserving patients' identities. Patients clearly expressed their hope that they can entrust their providers with the responsibility not only to maintain their detailed medical records, but also to hear and absorb their intimate memories, fears, and hopes. This approach has the potential to enhance both the perceived and actual quality of care, ensuring that patients feel heard, valued, and respected throughout their hospital journey.</p>","PeriodicalId":54627,"journal":{"name":"Perspectives in Biology and Medicine","volume":"69 3","pages":"353-366"},"PeriodicalIF":0.7000,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Perspectives in Biology and Medicine","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1353/pbm.2026.a1002734","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"HISTORY & PHILOSOPHY OF SCIENCE","Score":null,"Total":0}
引用次数: 0

Abstract

Since 2019, the authors have implemented the project Knowing Each Other Better Is Better Care, inviting patients scheduled for major surgery to write short biographies to be shared with their care teams. Rooted in the recognition that a strong therapeutic alliance improves treatment outcomes and patient satisfaction, this initiative aims to enhance patient-provider connections by integrating patients' biographies into their care. Analysis of 10 biographies reveals four recurring themes: the desire to be seen as unique individuals, the need for mutual trust with health-care providers, the wish for their hopes to be understood, and gratitude for the opportunity to share their stories. These findings challenge the custom that physicians and hospital staff should rely mainly on family members to bear the moral responsibility for preserving patients' identities. Patients clearly expressed their hope that they can entrust their providers with the responsibility not only to maintain their detailed medical records, but also to hear and absorb their intimate memories, fears, and hopes. This approach has the potential to enhance both the perceived and actual quality of care, ensuring that patients feel heard, valued, and respected throughout their hospital journey.

保存患者身份:大手术前的患者传记。
自2019年以来,作者实施了“更好地了解彼此就是更好的护理”项目,邀请计划接受大手术的患者撰写简短的传记,与他们的护理团队分享。由于认识到强大的治疗联盟可以提高治疗效果和患者满意度,该计划旨在通过将患者的传记整合到他们的护理中来加强患者与提供者的联系。对10部传记的分析揭示了四个反复出现的主题:希望被视为独特的个体,需要与卫生保健提供者相互信任,希望他们的希望得到理解,以及感谢有机会分享他们的故事。这些发现挑战了医生和医院工作人员应该主要依靠家属来承担保护患者身份的道德责任的习俗。患者明确表示,他们希望他们可以委托他们的医生,不仅有责任保存他们详细的医疗记录,而且要倾听和吸收他们的亲密记忆、恐惧和希望。这种方法有可能提高护理的感知和实际质量,确保患者在整个医院旅程中感到被倾听、被重视和被尊重。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
求助全文
约1分钟内获得全文 求助全文
来源期刊
Perspectives in Biology and Medicine
Perspectives in Biology and Medicine 医学-科学史与科学哲学
CiteScore
1.40
自引率
20.00%
发文量
42
审稿时长
>12 weeks
期刊介绍: Perspectives in Biology and Medicine, an interdisciplinary scholarly journal whose readers include biologists, physicians, students, and scholars, publishes essays that place important biological or medical subjects in broader scientific, social, or humanistic contexts. These essays span a wide range of subjects, from biomedical topics such as neurobiology, genetics, and evolution, to topics in ethics, history, philosophy, and medical education and practice. The editors encourage an informal style that has literary merit and that preserves the warmth, excitement, and color of the biological and medical sciences.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:604180095
Book学术官方微信
小红书