Experiences of Stigma Among Parents With Intellectual Disability: A Systematic Review and Thematic Synthesis

IF 2.2 3区医学 Q2 PSYCHOLOGY, EDUCATIONAL

Journal of Applied Research in Intellectual Disabilities Pub Date : 2026-09-29 DOI:10.1111/jar.70306

Ben McFarlane, Zoey Robinson, David Curran, Stephanie Burns

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引用次数: 0

Abstract

Background

Parents with intellectual disabilities experience stigma across parenting, professional and child protection contexts, yet existing systematic reviews have focused primarily on support needs and interventions.

Method

A systematic review and thematic synthesis was conducted to explore qualitative research on the lived experiences of stigma among parents with intellectual disabilities. Searches were conducted across CINAHL, MEDLINE, PsycINFO and Scopus. Twenty-three studies met inclusion criteria.

Results

Five analytical themes were identified: (1) Constructing parents as incompetent; (2) Regulating parenthood through surveillance and control; (3) Structural harm: Violence, coercion and family separation; (4) Living with stigma: identity, emotional impact and parenting experience; and (5) Negotiating and resisting stigma through support and agency.

Conclusion

Stigma shaped parents' identities, relationships with professionals and family outcomes, while parents actively resisted deficit-based assumptions. Findings highlight the need for accessible strengths-based supports.

查看原文本刊更多论文

智障父母的污名体验：系统回顾与专题综合。

背景：智力残疾父母在养育、专业和儿童保护方面都经历过耻辱，但现有的系统审查主要侧重于支持需求和干预措施。方法：采用系统综述和专题综合的方法，对智障父母的污名化生活经历进行定性研究。检索在CINAHL， MEDLINE， PsycINFO和Scopus上进行。23项研究符合纳入标准。结果：确定了五个分析主题：(1)构建不称职父母；(2)通过监督和控制来规范亲子关系；(3)结构性损害：暴力、胁迫和家庭分离；(4)污名化生活：身份、情感影响和养育经历；(5)通过支持和代理来协商和抵制污名化。结论：污名塑造了父母的身份、与专业人士的关系和家庭结果，而父母积极抵制基于缺陷的假设。调查结果强调需要可获得的基于优势的支持。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of Applied Research in Intellectual Disabilities Multiple-

CiteScore

4.70

自引率

12.50%

发文量

期刊介绍： JARID is an international, peer-reviewed journal which draws together findings derived from original applied research in intellectual disabilities. The journal is an important forum for the dissemination of ideas to promote valued lifestyles for people with intellectual disabilities. It reports on research from the UK and overseas by authors from all relevant professional disciplines. It is aimed at an international, multi-disciplinary readership. Topics covered include community living, quality of life, challenging behaviour, communication, sexuality, medication, ageing, supported employment, family issues, mental health, physical health, autism, economic issues, social networks, staff stress, staff training, epidemiology and service provision.