A qualitative description of the daily living functioning of people diagnosed with borderline personality disorder from consumer, carer and clinician perspectives

IF 2.1 4区 医学 Q2 REHABILITATION
Dillon Tepper, Ben Sellar, Sheryl Shipley, Rachel Smith, Carolyn Murray M
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Abstract

Introduction

Borderline personality disorder (BPD) is a severe and prevalent mental illness. Longitudinal research consistently demonstrates that people diagnosed with BPD experience persistent functional impairment despite current psychotherapeutic treatment. Functional impairment is typically defined in terms of performance in vocational and relational domains. However, functional recovery across multiple domains of functioning should also be considered, such as leisure, self-care, health and household management. This study aimed to describe the daily living functioning of people diagnosed with BPD from multistakeholder perspectives.

Methods

This qualitative descriptive study used semi-structured interviews with 22 participants, including consumers (n = 4), carers (n = 5) and clinicians (n = 13). Data were analysed using reflexive thematic analysis.

Consumer and community involvement

Consumer, carer and clinician consultants reviewed a draft of the interview guide and provided feedback on the terminology, question ordering and provision of practical examples. Their feedback was incorporated and amendments were made prior to data collection.

Findings

Five themes were generated: (1) structured routines, (2) extremes of doing, (3) a lot of energy required to manage in daily life, (4) doing when disconnected from values and identity and (5) doing through others. People diagnosed with BPD experienced challenges establishing and maintaining structured routines, engaged in boom-and-bust activity patterns, expended considerable energy managing emotions and interpersonal interactions, struggled to identify values to derive meaning from daily activities and relied on others to initiate and complete daily activities.

Conclusion

Functional recovery outcomes are important for people diagnosed with BPD. Occupational therapists are well positioned to support functional recovery for this population, which could involve exploring daily living functioning beyond a psychotherapeutic framework, including the structure of routines, sleep patterns, activity pacing, energy conservation, values identification, and the extent of carer involvement in daily activities.

从消费者、护理人员和临床医生的角度对边缘型人格障碍患者的日常生活功能进行定性描述。
边缘型人格障碍(BPD)是一种严重而普遍的精神疾病。纵向研究一致表明,尽管目前进行了心理治疗,但被诊断为BPD的人仍存在持续的功能障碍。功能障碍通常是根据职业和关系领域的表现来定义的。然而,还应考虑跨多个功能领域的功能恢复,如休闲、自我保健、健康和家庭管理。本研究旨在从多利益相关者的角度描述BPD患者的日常生活功能。方法:本定性描述性研究采用半结构化访谈法对22名参与者进行访谈,包括消费者(n = 4)、护理人员(n = 5)和临床医生(n = 13)。数据分析采用反身性主题分析。消费者和社区参与:消费者、护理人员和临床医生顾问审查了访谈指南草案,并就术语、问题排序和提供实际示例提供了反馈。他们的反馈意见被纳入并在数据收集之前进行了修正。研究发现:产生了五个主题:(1)结构化的例行公事;(2)极端的行为;(3)日常生活中管理所需的大量精力;(4)在与价值观和身份脱节的情况下做事;(5)通过他人做事。被诊断为BPD的人在建立和维持有组织的日常生活方面遇到了挑战,参与了兴衰起伏的活动模式,花费了相当大的精力来管理情绪和人际交往,努力识别从日常活动中获得意义的价值,并依赖他人来发起和完成日常活动。结论:功能恢复结果对诊断为BPD的患者很重要。职业治疗师可以很好地支持这类人群的功能恢复,这可能涉及探索心理治疗框架之外的日常生活功能,包括日常结构、睡眠模式、活动节奏、能量节约、价值观认同以及护理人员参与日常活动的程度。
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来源期刊
CiteScore
2.80
自引率
16.70%
发文量
69
审稿时长
6-12 weeks
期刊介绍: The Australian Occupational Therapy Journal is a leading international peer reviewed publication presenting influential, high quality innovative scholarship and research relevant to occupational therapy. The aim of the journal is to be a leader in the dissemination of scholarship and evidence to substantiate, influence and shape policy and occupational therapy practice locally and globally. The journal publishes empirical studies, theoretical papers, and reviews. Preference will be given to manuscripts that have a sound theoretical basis, methodological rigour with sufficient scope and scale to make important new contributions to the occupational therapy body of knowledge. AOTJ does not publish protocols for any study design The journal will consider multidisciplinary or interprofessional studies that include occupational therapy, occupational therapists or occupational therapy students, so long as ‘key points’ highlight the specific implications for occupational therapy, occupational therapists and/or occupational therapy students and/or consumers.
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