The Meaning of Life Story Card for People Undergoing Hemodialysis.

IF 2.6 3区医学 Q2 MEDICINE, GENERAL & INTERNAL

Patient preference and adherence Pub Date : 2026-09-23 eCollection Date: 2026-01-01 DOI:10.2147/PPA.S614365

Michiyo Oka, Hiroko Joboshi, Satsuki Takahashi, Mitsuhiro Matsumoto, Yu Imai, Yoshiko Sato

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引用次数: 0

Abstract

Purpose: Patients undergoing hemodialysis often experience various forms of psychological distress. The Life Story Card (LSC) intervention is designed to provide psychological support by encouraging patients to share their personal narratives, which are then compiled into concise cards. This study aimed to explore the meaning of the LSC intervention for patients undergoing hemodialysis.

Patients and methods: Twenty-one patients undergoing hemodialysis at a hospital were recruited. Data were collected through distribution of LSCs that summarized participants' narratives and through interviews exploring their impressions of the intervention. The data were analyzed using reflexive thematic analysis.

Results: Three themes emerged regarding the meaning of the LSC: "transforming narratives into tangible memories", "satisfaction in communicating my thoughts", and "gained courage to live"..

Conclusion: Although LSC interventions have primarily been used with patients with dementia, the results of this study suggest that they may also serve as a practical communication tool for hemodialysis patients facing various challenges. Furthermore, simplified LSCs, such as single cards that can be created quickly without preparing an entire booklet, were well-received by participants.

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血液透析患者生命故事卡片的意义。

目的：接受血液透析的患者经常会经历各种形式的心理困扰。生命故事卡（LSC）干预旨在通过鼓励患者分享他们的个人故事来提供心理支持，然后将其汇编成简明的卡片。本研究旨在探讨LSC干预对血液透析患者的意义。患者和方法：本研究招募了21名在某医院接受血液透析的患者。数据通过LSCs的分发收集，LSCs总结了参与者的叙述，并通过访谈探索他们对干预的印象。数据分析采用自反性主题分析。结果：关于LSC的意义，出现了三个主题：“将叙述转化为有形的记忆”，“在交流我的想法时感到满意”，以及“获得了生活的勇气”。结论：虽然LSC干预主要用于痴呆症患者，但本研究的结果表明，它们也可以作为面临各种挑战的血液透析患者的实用沟通工具。此外，简化的LSCs，如可以快速创建的单张卡片，而无需准备整个小册子，受到了参与者的好评。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Patient preference and adherence MEDICINE, GENERAL & INTERNAL-

CiteScore

3.60

自引率

4.50%

发文量

354

审稿时长

6-12 weeks

期刊介绍： Patient Preference and Adherence is an international, peer reviewed, open access journal that focuses on the growing importance of patient preference and adherence throughout the therapeutic continuum. The journal is characterized by the rapid reporting of reviews, original research, modeling and clinical studies across all therapeutic areas. Patient satisfaction, acceptability, quality of life, compliance, persistence and their role in developing new therapeutic modalities and compounds to optimize clinical outcomes for existing disease states are major areas of interest for the journal. As of 1st April 2019, Patient Preference and Adherence will no longer consider meta-analyses for publication.