Parental experiences of discharge preparation and preparedness after infants' hospitalization for surgically correctable congenital anomalies.

IF 2.3 3区医学 Q2 OBSTETRICS & GYNECOLOGY

Journal of Perinatology Pub Date : 2026-09-22 DOI:10.1038/s41372-026-02908-2

Adesola C Akinkuotu, Joy E Obayemi, Madelyn Johnson, Jordan Sharpe, Patricia Knoepp, Michael R Phillips, Scott Elton, William Goodnight, Sean E McLean, Darren A DeWalt

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引用次数: 0

Abstract

Objective: To explore parental experiences of pre-discharge education, discharge preparedness, and post-discharge support after infants' hospitalization for surgically correctable congenital anomalies (SCCAs).

Study design: Qualitative study using semi-structured interviews with English-speaking women whose pregnancies were associated with SCCAs from 2018-2023 and resulted in live birth and survival to discharge from a tertiary care children's hospital. Interviews were analyzed thematically.

Results: Twenty-two interviews were conducted. SCCAs included congenital diaphragmatic hernia (n = 8), congenital pulmonary airway malformations (n = 4), myelomeningocele (n = 5), gastroschisis (n = 4), or omphalocele (n = 1). Emergent themes were: (1) lack of consistency in pre-discharge education and preparation, (2) balancing anxiety and confidence, (3) parental need for multi-layered post-discharge support, and (4) parent-identified opportunities to strengthen discharge preparation and post-discharge support.

Conclusion: Parents of infants with SCCAs receive variable pre-discharge education that may limit self-efficacy and heighten anxiety during the transition home. Interventions including standardized, structured discharge education and post-discharge support may improve parental preparedness and post-discharge confidence.

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婴儿手术矫正先天性畸形住院后的出院准备和准备的父母经验。

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来源期刊

Journal of Perinatology 医学-妇产科学

CiteScore

5.40

自引率

6.90%

发文量

284

审稿时长

3-8 weeks

期刊介绍： The Journal of Perinatology provides members of the perinatal/neonatal healthcare team with original information pertinent to improving maternal/fetal and neonatal care. We publish peer-reviewed clinical research articles, state-of-the art reviews, comments, quality improvement reports, and letters to the editor. Articles published in the Journal of Perinatology embrace the full scope of the specialty, including clinical, professional, political, administrative and educational aspects. The Journal also explores legal and ethical issues, neonatal technology and product development. The Journal’s audience includes all those that participate in perinatal/neonatal care, including, but not limited to neonatologists, perinatologists, perinatal epidemiologists, pediatricians and pediatric subspecialists, surgeons, neonatal and perinatal nurses, respiratory therapists, pharmacists, social workers, dieticians, speech and hearing experts, other allied health professionals, as well as subspecialists who participate in patient care including radiologists, laboratory medicine and pathologists.