Caroline Hart, Stella Koritsas, Annie Loughens, Nell Buchanan, Mimari Hartono
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引用次数: 0
Abstract
Objectives
Many researchers think co-research, where people with and without intellectual disability work together, should happen more often and can be done better. One way of making co-research better is to give people with intellectual disability more chances to learn skills and take part in research. This article talks about a research course for people with intellectual disability. It looks at if the course had an impact and helped people learn about research. It also includes the thoughts of some participants who did the course and are now employed as Research Assistants.
Method
People who did the research course took part in interviews that asked them if there were any benefits to the course, what worked well and what was hard.
Results
Five of the eight people who did the course took part in interviews. The results showed that the course had a positive impact. The main benefits were learning new skills, feeling more confident, making friends and having purpose. Some suggested improvements were to have more breaks and use more accessible written information.
Conclusions
Learning about research can help people with intellectual disability meaningfully take part in co-research. When they get the chance to learn, build skills and take on research roles, they are supported and empowered to take part equally with others. This can help people with intellectual disability realise their rights. It can also help create knowledge that matters to them.
期刊介绍:
Advances in Neurodevelopmental Disorders publishes high-quality research in the broad area of neurodevelopmental disorders across the lifespan. Study participants may include individuals with:Intellectual and developmental disabilitiesGlobal developmental delayCommunication disordersLanguage disordersSpeech sound disordersChildhood-onset fluency disorders (e.g., stuttering)Social (e.g., pragmatic) communication disordersUnspecified communication disordersAutism spectrum disorder (ASD)Attention-deficit/hyperactivity disorder (ADHD), specified and unspecifiedSpecific learning disordersMotor disordersDevelopmental coordination disordersStereotypic movement disorderTic disorders, specified and unspecifiedOther neurodevelopmental disorders, specified and unspecifiedPapers may also include studies of participants with neurodegenerative disorders that lead to a decline in intellectual functioning, including Alzheimer’s disease, amyotrophic lateral sclerosis, Creutzfeldt-Jakob disease, vascular dementia, Lewy body dementia, frontotemporal dementia, corticobasal degeneration, Huntington’s disease, and progressive supranuclear palsy. The journal includes empirical, theoretical and review papers on a large variety of issues, populations, and domains, including but not limited to: diagnosis; incidence and prevalence; and educational, pharmacological, behavioral and cognitive behavioral, mindfulness, and psychosocial interventions across the life span. Animal models of basic research that inform the understanding and treatment of neurodevelopmental disorders are also welcomed. The journal is multidisciplinary and multi-theoretical, and encourages research from multiple specialties in the social sciences using quantitative and mixed-method research methodologies.