International Society of Paediatric Oncology (SIOP) Global Mapping Programme of Pediatric Oncology Services: Data Collection in India.

Abstract

Background: The International Society of Paediatric Oncology launched the Global Mapping Programme in 2018 to systematically map pediatric oncology services worldwide. Objectives were to document regional resources, maintain a publicly accessible stakeholder map, engage key stakeholders, and strengthen referral pathways. India, the world's most populous country (1.45 billion), has nearly 25% of its population under 15 years. The healthcare system, disparities in resources, access, and cost leave the true childhood cancer burden inadequately defined. Mapping pediatric cancer units (PCUs) is critical to identify the strengths and gaps and help policymakers, non-governmental organizations, funders, and clinicians. The data collection processes developed for mapping India are detailed in this report.

Procedure: The Pediatric Hematology Oncology Chapter of the Indian Academy of Pediatrics developed a 98-item survey to assess infrastructure, resources, and support systems. Designed to capture the heterogeneity of healthcare, it is the most extensive survey conducted within any Global Mapping Programme region. Launched in December 2023, it targeted approximately 150 PCUs, with responses limited to one per hospital.

Results: The survey closed in December 2024 with 133 responses, covering most centers, although some non-response remains a limitation.

Conclusions: National cancer control policies in India have given limited attention to children. The mapping data can guide alignment with the World Health Organization Global Initiative for Childhood Cancer and support progress toward the CureAll framework goal of 60% survival. Achieving this goal requires coordinated central and state action to address gaps in workforce, resources, and family support, along with periodic reassessment of capacity in pediatric oncology.