Family Caregiving and Psychosocial Support in Hospice and Palliative Care: A Social Work Perspective.

Jung-Won Lim
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Abstract

Family caregiving and psychosocial support are essential components of high-quality hospice and palliative care. This review examined family caregiving and psychosocial support in hospice and palliative care from a social work perspective. Specifically, it reviewed the current evidence on family caregiving and psychosocial interventions for family caregivers, re-examined the evolving role of hospice social workers, and discussed implications for future research, practice, and policy in hospice social work. Evidence has indicated that psychosocial interventions effectively reduce caregivers' psychological distress, depression, and anxiety while improving their quality of life and family communication. However, caregiving burden remains a multidimensional challenge that cannot be adequately addressed through psychosocial interventions alone, highlighting the need for structural and community-based support. The review also found that hospice social workers are key providers of psychosocial counseling, caregiving burden assessment, resource coordination, communication facilitation, and decision-making support. Nevertheless, role ambiguity, workforce shortages, and limited institutional recognition remain significant barriers to the delivery of comprehensive family-centered hospice care. Strengthening the evidence base for hospice social work will not only enhance the professional recognition of hospice social workers but also improve the quality of hospice and palliative care by advancing comprehensive patient- and family-centered care.

安宁疗护与缓和疗护中的家庭照护与心理社会支持:社会工作视角。
家庭照护和社会心理支持是高质量临终关怀和姑息治疗的重要组成部分。本研究从社会工作的角度检视安宁疗护与缓和疗护的家庭照护与心理社会支持。特别地,本文回顾了目前关于家庭照护和家庭照护者的心理社会干预的证据,重新检视安宁疗护社会工作者角色的演变,并讨论安宁疗护社会工作未来的研究、实践和政策的启示。有证据表明,社会心理干预有效地减少了照顾者的心理困扰、抑郁和焦虑,同时改善了他们的生活质量和家庭沟通。然而,护理负担仍然是一项多方面的挑战,仅通过社会心理干预措施无法充分解决,因此需要结构性和基于社区的支持。本研究亦发现安宁疗护社工是心理辅导、照护负担评估、资源协调、沟通促进及决策支持等服务的主要提供者。然而,角色模糊、劳动力短缺和有限的机构认可仍然是提供全面的以家庭为中心的临终关怀的重大障碍。加强安宁疗护社会工作的实证基础,不但能提升安宁疗护社工的专业认知度,也能促进以病人及家庭为中心的综合疗护,提升安宁疗护及缓和疗护的品质。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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