[Evaluation of the expectations of patients with endometriosis regarding the EndOccitanie care network].

IF 1 4区医学 Q4 OBSTETRICS & GYNECOLOGY

Gynecologie Obstetrique Fertilite & Senologie Pub Date : 2026-08-14 DOI:10.1016/j.gofs.2026.08.002

Alexa Miran, Thierry Brillac, Elodie Chantalat

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引用次数: 0

Abstract

Objective: The management of patients with endometriosis remains marked by a long, fragmented, and poorly coordinated care pathway, leading to significant diagnostic delay. In this context, the regional EndOccitanie network is being developed to improve the organization and quality of care. The aim of this study was to identify the expectations of patients regarding this network.

Methods: We conducted a descriptive epidemiological study using an online questionnaire administered through the LimeSurvey platform and distributed via the patient associations EndoFrance, Endomind, and the EndOccitanie network. Participants, all diagnosed with endometriosis, evaluated various aspects of their care pathway using a Likert scale.

Results: The results highlight several priority expectations: access to clear and reliable information, the implementation of a coordinated and accessible care pathway, and a comprehensive approach to the disease, including pain management, sexuality, and fertility.

Conclusion: These findings underscore the need to further strengthen the structuring of the EndOccitanie network in order to improve the accessibility, continuity, and quality of care. A future reassessment will help measure the impact of the actions implemented.

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[评价子宫内膜异位症患者对内镜护理网络的期望]。

目的：子宫内膜异位症患者的治疗仍然是一个漫长、碎片化和不协调的护理途径，导致严重的诊断延误。在这方面，正在发展区域医疗保健网络，以改善护理的组织和质量。本研究的目的是确定患者对该网络的期望。方法：我们通过limessurvey平台进行了一项描述性流行病学研究，并通过患者协会EndoFrance、Endomind和endocititanie网络分发了一份在线问卷。所有诊断为子宫内膜异位症的参与者使用李克特量表评估其护理途径的各个方面。结果：结果突出了几个优先期望：获得清晰可靠的信息，实施协调和可获得的护理途径，以及对疾病的综合方法，包括疼痛管理、性和生育。结论：这些发现强调需要进一步加强内窥镜网络的结构，以提高护理的可及性、连续性和质量。未来的重新评估将有助于衡量所实施行动的影响。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Gynecologie Obstetrique Fertilite & Senologie Medicine-Obstetrics and Gynecology

CiteScore

1.70

自引率

0.00%

发文量

170

期刊介绍： Gynécologie Obstétrique Fertilité & Sénologie est un mensuel scientifique d''information et de formation destiné aux gynécologues, aux obstétriciens, aux sénologues et aux biologistes de la reproduction. La revue, dans ses éditoriaux, articles originaux, mises au point, lettres à la rédaction et autres rubriques, donne une information actualisée ayant trait à l''obstétrique et à la gynécologie et aux différentes spécialités développées à partir de ces deux pôles : médecine de la reproduction, médecine maternelle et fœtale, périnatalité, endocrinologie, chirurgie gynécologique, cancérologie pelvienne, sénologie, sexualité, psychosomatique…