Efectos del confinamiento por COVID-19 en los pacientes de la Asociación Balear de Esclerosis Múltiple

Abstract

Introduction

Multiple Sclerosis is a neurodegenerative and inflammatory illness diagnosed in young adults. Domiciliary confinement for the Sars-Cov-2 pandemic was a situation that generated isolation, lack of activity and an alteration of sanity and associative services. This diminution of activity could generate an alteration on this health and quality of life.

Objectives

The aim of this study is to know changes in physical, cognitive, emotional and social states in patients from the Balearic Association of Multiple Sclerosis during confinement of Sars-Cov-2 pandemic. In addition to describe the adaptations of health and associative resources during this period.

Methodology

Cross-sectional descriptive study. All ABDEM patients diagnosed with MS were included. An ad-hoc questionnaire with Likert-type response options was administered.

Results

A total of 102 surveys were obtained. 69.6% of the participants were women, 49% aged 35-44 years, mean age 41.3 (10.9). 48% were in active employment and 47.1% had been diagnosed with the disease for between 3 and 10 years, mean 11.2 (8.3). 23.3% showed worsening fatigue, 13.4% greater mobility disturbances and 14.8% more pain. 21.1% had increased concentration problems. 11.3% had symptoms of anxiety. Hospital service adaptations were evaluated with 94.9% satisfaction, primary care with 88% and ABDEM with 97.9%.

Conclusion

This study described an alteration in physical, cognitive, emotional and occupational symptoms during the confinement phase of COVID. MS patients require cross-cutting care plans that can meet their needs despite crisis situations such as those experienced during the pandemic.

The different adaptations made by health services and associations working with people with MS were also presented. These services responded satisfactorily to the needs shown by patients in confinement. Nevertheless, it is important to analyse these situations so that health organisations can respond to the needs of patients in times of crisis.