A case series evaluation of a schema therapy-coaching programme for carers of patients with moderate to severe anorexia nervosa: the CAREFREE programme.

IF 5.7 3区 医学 Q2 NUTRITION & DIETETICS
Emma Mawdsley, Stacey McNicol, Alasdair C Rutherford, Lesley Symon, Debbie Smith, Hazel Elliott, Susan Simpson
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引用次数: 0

Abstract

Background: Anorexia Nervosa (AN) can be a complex condition to treat, often complicated by high chronicity, complexity and comorbidity. Treatments for AN with comorbidity and complexity are limited, with carers having to take a large role in supporting these individuals. Carer distress can be high, impacting carer wellbeing and contributing to familial dynamics which can also perpetuate AN behaviours as a way of coping. This study evaluated a novel carers group, the CAREFREE programme, for the specific needs of carers of Moderate to Severe AN (MS-AN: adults with AN who have not responded to previous treatments, have a complex comorbidity, and/or complex aetiology), using schema therapy-focused coaching to improve carer distress and family functioning.

Methods: A non-concurrent group case series design was employed. Outcome measures included carer distress, expressed emotion, family functioning and communication, mood, and attachment-related anxiety and avoidance. Outcomes were analysed at 4-timepoints, (i.e. pre-intervention, mid-point [6 weeks], post-intervention [12-weeks] and 3-month follow-up), using multi-level modelling.

Results: 53 carers commenced the programme in the study across 5 groups. Carer distress, expressed emotion, family functioning, mood and attachment-related avoidance significantly improved after the end of the group and remained significantly improved at follow-up. Attachment-anxiety did not lead to statistically significant changes, although a trend of improvement was seen.

Conclusions: Preliminary evidence suggests improvements in carer wellbeing and family functioning following participation in the CAREFREE programme for carers of MS-AN. Attachment outcome measures that did not lead to statistically significant change may be related to the time-limited nature of the intervention and the group intervention itself, with greater change in attachment outcomes often requiring individualised and more intensive interventions. Future research is required to explore what impact this has on patient outcomes. Trial registration This study was registered with clinicaltrials.gov (ClinicalTrials.gov ID: NCT06624397).

对中度至重度神经性厌食症患者护理人员图式治疗指导方案的案例系列评估:无忧无虑方案。
背景:神经性厌食症(AN)是一种复杂的治疗疾病,通常具有高慢性、复杂性和合并症。对合并并发症和复杂性的AN的治疗是有限的,护理人员必须在支持这些个体方面发挥重要作用。照顾者的痛苦可能很高,会影响照顾者的幸福感,并导致家庭动态,这也可能使AN行为作为一种应对方式永续下去。本研究评估了一种新的护理小组,无忧无虑计划,针对中重度AN (MS-AN:患有AN的成人,对以前的治疗没有反应,有复杂的合并症,和/或复杂的病因)的护理人员的特殊需求,使用图式治疗为重点的指导来改善护理人员的困扰和家庭功能。方法:采用非并发组病例系列设计。结果测量包括照顾者痛苦、表达的情绪、家庭功能和沟通、情绪、依恋相关的焦虑和回避。采用多层次模型分析4个时间点(即干预前、中期[6周]、干预后[12周]和随访3个月)的结果。结果:53名护理人员在5组中开始了这项研究。护理者痛苦、情绪表达、家庭功能、情绪和依恋相关回避在小组结束后显著改善,并在随访中保持显著改善。依恋焦虑并没有导致统计上的显著变化,尽管可以看到改善的趋势。结论:初步证据表明,参与MS-AN护理人员的无忧无虑计划后,护理人员的福祉和家庭功能有所改善。没有导致统计上显著变化的依恋结果测量可能与干预的时间限制性质和群体干预本身有关,依恋结果的更大变化通常需要个性化和更密集的干预。未来的研究需要探索这对患者预后的影响。本研究已在clinicaltrials.gov注册(clinicaltrials.gov ID: NCT06624397)。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Journal of Eating Disorders
Journal of Eating Disorders Neuroscience-Behavioral Neuroscience
CiteScore
5.30
自引率
17.10%
发文量
161
审稿时长
16 weeks
期刊介绍: Journal of Eating Disorders is the first open access, peer-reviewed journal publishing leading research in the science and clinical practice of eating disorders. It disseminates research that provides answers to the important issues and key challenges in the field of eating disorders and to facilitate translation of evidence into practice. The journal publishes research on all aspects of eating disorders namely their epidemiology, nature, determinants, neurobiology, prevention, treatment and outcomes. The scope includes, but is not limited to anorexia nervosa, bulimia nervosa, binge eating disorder and other eating disorders. Related areas such as important co-morbidities, obesity, body image, appetite, food and eating are also included. Articles about research methodology and assessment are welcomed where they advance the field of eating disorders.
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