A Minority Within a Minority: Lived Meanings of Cancer Among Arab Young Adults in East Jerusalem.

IF 3.9 2区 医学 Q2 ONCOLOGY
Rola Abd Elgani, Yaffa Naomi Stokar
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引用次数: 0

Abstract

Objective: Young adulthood is a socially and biographically formative life stage, yet young adults from ethnic-national minority groups remain underrepresented in psycho-oncology research. This study examined how Arab young adults (YA) from East Jerusalem make meaning of cancer while receiving treatment in predominantly Jewish-Israeli hospitals.

Methods: Guided by a context-informed, constructivist qualitative framework, we conducted semi-structured, in-depth interviews with 15 Arab YA (aged 23-45) who were undergoing active cancer treatment. Interviews were conducted in Arabic, transcribed verbatim, and analyzed using reflexive thematic analysis to capture culturally and developmentally embedded meanings of illness and care.

Results: Two interrelated sets of lived meanings emerged. First, participants described cancer through culturally embedded frameworks shaped by stigma, secrecy, family responsibility, and faith-based interpretations that provided meaning and emotional containment. These meanings were closely tied to the future-oriented concerns and relational obligations of young adulthood. Second, participants experienced Israeli hospitals as ambivalent institutional spaces: often perceived as safe, compassionate, and politically neutral yet at times marked by cultural misattunement, language barriers, and subtle inequality. Together, the findings show that cancer was experienced not only as a medical condition but as a deeply contextualized social and developmental experience.

Conclusions: The experience of cancer among Arab YA from East Jerusalem is shaped by the intersection of developmental stage, minority positioning, and institutional context. These findings highlight the importance of context-informed and culturally responsive psycho-oncology care for young patients from socially and politically marginalized backgrounds.

少数群体中的少数群体:癌症在东耶路撒冷阿拉伯年轻人中的生活意义。
目的:青年成年期是社会和传记形成的生命阶段,然而少数民族青年在心理肿瘤学研究中的代表性仍然不足。这项研究调查了来自东耶路撒冷的阿拉伯年轻人(YA)在以犹太人为主的以色列医院接受治疗时如何理解癌症。方法:在背景信息、建构主义定性框架的指导下,我们对15名正在接受积极癌症治疗的阿拉伯青年(23-45岁)进行了半结构化的深度访谈。访谈以阿拉伯语进行,逐字记录,并使用反身性专题分析进行分析,以捕捉疾病和护理的文化和发展内涵。结果:出现了两组相互关联的生活意义。首先,参与者通过文化嵌入框架描述癌症,这些框架由耻辱、保密、家庭责任和基于信仰的解释形成,这些解释提供了意义和情感遏制。这些意义与青年的面向未来的关切和关系义务密切相关。其次,参与者认为以色列医院是一个矛盾的机构空间:通常被认为是安全的、富有同情心的、政治中立的,但有时却存在文化失调、语言障碍和微妙的不平等。总之,研究结果表明,癌症不仅是一种医疗状况,而且是一种深刻的社会和发展经历。结论:来自东耶路撒冷的阿拉伯青年的癌症经历是由发展阶段、少数民族定位和制度背景的交叉影响而形成的。这些发现强调了对来自社会和政治边缘化背景的年轻患者进行情境知情和文化响应性心理肿瘤护理的重要性。
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来源期刊
Psycho‐Oncology
Psycho‐Oncology 医学-心理学
CiteScore
6.30
自引率
8.30%
发文量
220
审稿时长
3-8 weeks
期刊介绍: Psycho-Oncology is concerned with the psychological, social, behavioral, and ethical aspects of cancer. This subspeciality addresses the two major psychological dimensions of cancer: the psychological responses of patients to cancer at all stages of the disease, and that of their families and caretakers; and the psychological, behavioral and social factors that may influence the disease process. Psycho-oncology is an area of multi-disciplinary interest and has boundaries with the major specialities in oncology: the clinical disciplines (surgery, medicine, pediatrics, radiotherapy), epidemiology, immunology, endocrinology, biology, pathology, bioethics, palliative care, rehabilitation medicine, clinical trials research and decision making, as well as psychiatry and psychology. This international journal is published twelve times a year and will consider contributions to research of clinical and theoretical interest. Topics covered are wide-ranging and relate to the psychosocial aspects of cancer and AIDS-related tumors, including: epidemiology, quality of life, palliative and supportive care, psychiatry, psychology, sociology, social work, nursing and educational issues. Special reviews are offered from time to time. There is a section reviewing recently published books. A society news section is available for the dissemination of information relating to meetings, conferences and other society-related topics. Summary proceedings of important national and international symposia falling within the aims of the journal are presented.
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