Reducing Parental Accommodation in Neurodiverse Families: Adaptation of a Digital Single-Session Intervention.

IF 2.5 3区 医学 Q2 PSYCHIATRY
Yufan Wang, Jenna Y Sung, Kamryn Reynolds, Jessica L Schleider, Heather J Risser
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Abstract

Families of children with neurodevelopmental disorders often face limited access to evidence-based mental health care and supports, despite a disproportionately high prevalence of co-occurring conditions, such as anxiety, among these children. This study aimed to adapt a digital single-session intervention (SSI) designed to reduce parental accommodation of child anxiety by incorporating direct feedback from parents of neurodiverse children. In December 2024, five online human-centered design workshops were conducted with six parents, who provided input on the intervention's content (e.g., clarity, relevance) and acceptability (e.g., language, confidence to make a change). Responses were systematically coded and analyzed using content analysis. Across workshops, parents emphasized the need for interventions to be practically relevant, emotionally validating, and reflective of daily caregiving experiences, where "every day can feel like a wrestling match." Participants also raised concerns about the term "accommodation," which carries a positive connotation within the disability communities. Based on this feedback, revisions included incorporating neurodiversity-specific examples and parenting strategies and using descriptions of rather than labeling parenting behaviors. Through lived experiences, caregiver feedback revealed important adaptations needed to enhance intervention effectiveness and acceptability. Co-designing SSIs with families has the potential to promote equitable access to evidence-based mental health care, and successful adaptations present a scalable framework for integrating SSIs into child mental health services across settings.

减少神经多样性家庭中父母的迁就:数字单次干预的适应。
患有神经发育障碍的儿童的家庭获得循证精神卫生保健和支持的机会往往有限,尽管这些儿童中同时出现焦虑症等疾病的比例过高。本研究旨在采用数字单次干预(SSI),通过纳入神经多样性儿童父母的直接反馈,减少父母对儿童焦虑的适应。2024年12月,六名家长参与了五次以人为本的在线设计研讨会,他们就干预措施的内容(如清晰度、相关性)和可接受性(如语言、做出改变的信心)提供了意见。使用内容分析对应答进行系统编码和分析。在研讨会上,家长们强调干预的必要性是实际相关的,情感上的验证,并反映日常护理经验,“每天都感觉像一场摔跤比赛”。与会者还对“住宿”一词表示关切,该词在残疾人社区中具有积极的含义。根据这些反馈,修订包括纳入神经多样性特定的例子和育儿策略,并使用描述而不是标签育儿行为。通过生活经验,照顾者反馈揭示了提高干预有效性和可接受性所需的重要适应。与家庭共同设计ssi有可能促进公平获得基于证据的精神卫生保健,并且成功的调整提供了一个可扩展的框架,将ssi纳入各种环境下的儿童精神卫生服务。
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来源期刊
CiteScore
0.50
自引率
3.40%
发文量
174
期刊介绍: Child Psychiatry & Human Development is an interdisciplinary international journal serving the groups represented by child and adolescent psychiatry, clinical child/pediatric/family psychology, pediatrics, social science, and human development. The journal publishes research on diagnosis, assessment, treatment, epidemiology, development, advocacy, training, cultural factors, ethics, policy, and professional issues as related to clinical disorders in children, adolescents, and families. The journal publishes peer-reviewed original empirical research in addition to substantive and theoretical reviews.
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