Exploring the Experiences of Cancer Patients Following an Internet-Based Cognitive Behavioral Therapy for Insomnia With Professional Phone Guidance: The Sleep-4-All-2.0 Study.
Jonathan Journiac, Anne-Laure Sébert, Louise Zanni, Léonor Fasse, Dominique Hernot, Alexandra Monod, Cécile Charles, Jean-Bernard Le Provost, Estelle Guerdoux, Guilhem Paillard-Brunet, Josée Savard, Sarah Dauchy, Diane Boinon
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引用次数: 0
Abstract
Background: Sleep problems affect 30%-95% of cancer patients. Cognitive Behavioral Therapy for Insomnia is recognized as the most effective treatment for insomnia. However, implementing it is challenging due to a lack of time, human resources, and financial support. Internet-Based Cognitive Behavioral Therapy (ICBT-I) is appreciated by patients, but it lacks professional guidance.
Aims: The Sleep-4-All-2.0 study combined a validated ICBT-I program, lasting 6-12 weeks, with up to four individual, phone-based ICBT-I psychology sessions. The current study sought to explore patients' experiences of the program, focusing on their perceptions of the professional guidance.
Methods: Cancer patients from three different hospitals were interviewed. Out of their discourse, a thematic analysis was conducted.
Results: 48 patients were included. Three themes were constructed: (1) Coping with the program, (2) Connections at play (professionals, family, patients, sleep interactions), (3) Benefits and limits of psychological guidance. Although most participants were delighted with the program and the guidance, they encountered numerous difficulties due to personal and external issues, as well as the demands of CBT. Participants highlighted the need to be connected to other patients, supported by their families, and to receive well-informed care from healthcare professionals (HCP). The phone guidance was important for pragmatic and motivational reasons.
Conclusion: In order to improve program follow-up, clinicians should work beforehand to adjust expectations and take into account the specific vulnerabilities of certain patients.
背景:30%-95%的癌症患者存在睡眠问题。认知行为疗法被认为是治疗失眠最有效的方法。然而,由于缺乏时间、人力资源和财政支持,实施它是具有挑战性的。基于网络的认知行为疗法(ICBT-I)受到患者的认可,但缺乏专业指导。目的:睡眠-4- all -2.0研究结合了一个经过验证的ICBT-I项目,持续6-12周,以及多达4个基于电话的ICBT-I心理课程。目前的研究旨在探索患者对该计划的体验,重点关注他们对专业指导的看法。方法:对来自三家不同医院的肿瘤患者进行访谈。对他们的话语进行了主题分析。结果:纳入48例患者。构建了三个主题:(1)应对程序;(2)发挥作用的联系(专业人员、家庭、患者、睡眠互动);(3)心理指导的益处和局限性。虽然大多数参与者对课程和指导都很满意,但由于个人和外部问题以及CBT的要求,他们遇到了许多困难。与会者强调需要与其他患者联系,得到家属的支持,并接受医疗保健专业人员(HCP)的知情护理。电话指导是重要的务实和激励的原因。结论:为了提高项目随访效果,临床医生应提前调整预期,并考虑到特定患者的特定脆弱性。
期刊介绍:
Psycho-Oncology is concerned with the psychological, social, behavioral, and ethical aspects of cancer. This subspeciality addresses the two major psychological dimensions of cancer: the psychological responses of patients to cancer at all stages of the disease, and that of their families and caretakers; and the psychological, behavioral and social factors that may influence the disease process. Psycho-oncology is an area of multi-disciplinary interest and has boundaries with the major specialities in oncology: the clinical disciplines (surgery, medicine, pediatrics, radiotherapy), epidemiology, immunology, endocrinology, biology, pathology, bioethics, palliative care, rehabilitation medicine, clinical trials research and decision making, as well as psychiatry and psychology.
This international journal is published twelve times a year and will consider contributions to research of clinical and theoretical interest. Topics covered are wide-ranging and relate to the psychosocial aspects of cancer and AIDS-related tumors, including: epidemiology, quality of life, palliative and supportive care, psychiatry, psychology, sociology, social work, nursing and educational issues.
Special reviews are offered from time to time. There is a section reviewing recently published books. A society news section is available for the dissemination of information relating to meetings, conferences and other society-related topics. Summary proceedings of important national and international symposia falling within the aims of the journal are presented.