Impact of Time on Patients' Lived Perinatal Loss Experience.

IF 1.3 4区 医学 Q3 NURSING
Carol Dean Tuten, Georgina Lucas, Michelle Page, Brooke Murray, Lucy Easler
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引用次数: 0

Abstract

Miscarriages and intrauterine fetal demises may have a negative impact on bereaved parents, with reports of grief, guilt, and a sense of isolation. Utilizing Bowlby's Caregiving Theory as a framework, this study examined the impact of time spent with the baby on the patient's lived perinatal loss experience, a phenomenon with limited investigation. Using a descriptive phenomenological approach, data were gathered retrospectively through interviews with mothers from 2 inpatient facilities at 3 and 6 weeks postpartum. Four major themes were identified: a sense of hopefulness, lack of support (follow-up care) from nursing/health care providers, importance of time with baby, and the need as parents to protect, nurture, and socialize (honor) their baby. Five additional minor themes identified and unique to individual facilities included a perceived lack of anticipatory guidance, need for communication in the moment, importance of mementoes, personhood related to baby, and the perception of abandoning baby at the time of discharge. All but one of the participants spoke about the significance of time with their baby. Most parents have the need to parent even in death, and health care professionals greatly impact whether mothers are given the opportunity to parent while in the hospital.

时间对患者围产期丧失经历的影响。
流产和宫内胎儿死亡可能对失去亲人的父母产生负面影响,有悲伤、内疚和孤立感的报道。利用鲍尔比的护理理论为框架,本研究考察了与婴儿一起度过的时间对患者围产期丧失经历的影响,这是一种调查有限的现象。采用描述性现象学方法,通过对两家住院医院产后3周和6周的母亲进行回顾性访谈收集数据。确定了四个主要主题:希望感,缺乏护理/卫生保健提供者的支持(后续护理),与婴儿在一起的时间的重要性,以及父母需要保护,培养和社交(尊重)他们的婴儿。另外五个确定的个别设施特有的小主题包括:缺乏预期指导、需要即时沟通、纪念品的重要性、与婴儿有关的人格以及在出院时遗弃婴儿的观念。除了一个人之外,所有的参与者都谈到了与孩子在一起的时间的重要性。大多数父母即使在去世后也需要照顾孩子,而医疗保健专业人员在很大程度上影响着母亲是否有机会在住院期间照顾孩子。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
CiteScore
2.60
自引率
11.10%
发文量
203
审稿时长
6-12 weeks
期刊介绍: Journal of Hospice & Palliative Nursing (JHPN) is the official journal of the Hospice & Palliative Nurses Association and is the professional, peer-reviewed journal for nurses in hospice and palliative care settings. Focusing on the clinical, educational and research aspects of care, JHPN offers current and reliable information on end of life nursing. Feature articles in areas such as symptom management, ethics, and futility of care address holistic care across the continuum. Book and article reviews, clinical updates and case studies create a journal that meets the didactic and practical needs of the nurse caring for patients with serious illnesses in advanced stages.
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