Carol Dean Tuten, Georgina Lucas, Michelle Page, Brooke Murray, Lucy Easler
{"title":"Impact of Time on Patients' Lived Perinatal Loss Experience.","authors":"Carol Dean Tuten, Georgina Lucas, Michelle Page, Brooke Murray, Lucy Easler","doi":"10.1097/NJH.0000000000001199","DOIUrl":null,"url":null,"abstract":"<p><p>Miscarriages and intrauterine fetal demises may have a negative impact on bereaved parents, with reports of grief, guilt, and a sense of isolation. Utilizing Bowlby's Caregiving Theory as a framework, this study examined the impact of time spent with the baby on the patient's lived perinatal loss experience, a phenomenon with limited investigation. Using a descriptive phenomenological approach, data were gathered retrospectively through interviews with mothers from 2 inpatient facilities at 3 and 6 weeks postpartum. Four major themes were identified: a sense of hopefulness, lack of support (follow-up care) from nursing/health care providers, importance of time with baby, and the need as parents to protect, nurture, and socialize (honor) their baby. Five additional minor themes identified and unique to individual facilities included a perceived lack of anticipatory guidance, need for communication in the moment, importance of mementoes, personhood related to baby, and the perception of abandoning baby at the time of discharge. All but one of the participants spoke about the significance of time with their baby. Most parents have the need to parent even in death, and health care professionals greatly impact whether mothers are given the opportunity to parent while in the hospital.</p>","PeriodicalId":54807,"journal":{"name":"Journal of Hospice & Palliative Nursing","volume":"28 4","pages":"194-199"},"PeriodicalIF":1.3000,"publicationDate":"2026-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Hospice & Palliative Nursing","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1097/NJH.0000000000001199","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2026/6/25 0:00:00","PubModel":"Epub","JCR":"Q3","JCRName":"NURSING","Score":null,"Total":0}
引用次数: 0
Abstract
Miscarriages and intrauterine fetal demises may have a negative impact on bereaved parents, with reports of grief, guilt, and a sense of isolation. Utilizing Bowlby's Caregiving Theory as a framework, this study examined the impact of time spent with the baby on the patient's lived perinatal loss experience, a phenomenon with limited investigation. Using a descriptive phenomenological approach, data were gathered retrospectively through interviews with mothers from 2 inpatient facilities at 3 and 6 weeks postpartum. Four major themes were identified: a sense of hopefulness, lack of support (follow-up care) from nursing/health care providers, importance of time with baby, and the need as parents to protect, nurture, and socialize (honor) their baby. Five additional minor themes identified and unique to individual facilities included a perceived lack of anticipatory guidance, need for communication in the moment, importance of mementoes, personhood related to baby, and the perception of abandoning baby at the time of discharge. All but one of the participants spoke about the significance of time with their baby. Most parents have the need to parent even in death, and health care professionals greatly impact whether mothers are given the opportunity to parent while in the hospital.
期刊介绍:
Journal of Hospice & Palliative Nursing (JHPN) is the official journal of the Hospice & Palliative Nurses Association and is the professional, peer-reviewed journal for nurses in hospice and palliative care settings. Focusing on the clinical, educational and research aspects of care, JHPN offers current and reliable information on end of life nursing.
Feature articles in areas such as symptom management, ethics, and futility of care address holistic care across the continuum. Book and article reviews, clinical updates and case studies create a journal that meets the didactic and practical needs of the nurse caring for patients with serious illnesses in advanced stages.