Evaluation of the quality of life among caregivers of patients receiving palliative care.

International journal of palliative nursing Pub Date : 2026-01-02 DOI:10.12968/ijpn.2025.0035

Zeynep Aslan Hişmioğulları, Olgu Aygün, Bakiye Nurdan Tekgül, Merve Savcı, Meryem Çakır, Umut Gök

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Abstract

Aim: To assess the quality of life of relatives of palliative care patients and to raise awareness about practices that may improve it.

Methods: In this cross-sectional analytical study, the data collection form and the SF-36 Quality of Life Scale were applied to the participants. The study was conducted with 409 relatives of patients who cared for inpatients in the Palliative Care Department of Izmir City Hospital between 25.02.2024-25.08.2024.

Results: Among the caregivers included in the study, 71.1% neglected themselves, 69.7% had restricted social lives, 61.9% had sleep problems, and felt that their quality of life had declined since becoming a caregiver. However, receiving professional training about the caregiving process and being informed about legal rights increased the quality of caregiver's lives.

Conclusion: Family physicians should focus on both caregivers and patients, supporting caregivers psychosocially, and provide education on palliative care and legal rights.

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对接受姑息治疗患者的护理者的生活质量进行评估。

目的：评估姑息治疗患者亲属的生活质量，并提高人们对可能改善姑息治疗的做法的认识。方法：采用横断面分析研究，采用数据收集表和SF-36生活质量量表对被试进行问卷调查。该研究是在2024年2月25日至2024年8月25日期间在伊兹密尔市医院姑息治疗部照顾住院患者的409名患者亲属中进行的。结果：在参与研究的照顾者中，71.1%的人忽视了自己，69.7%的人限制了社交生活，61.9%的人有睡眠问题，他们觉得自己的生活质量在成为照顾者后有所下降。然而，接受有关护理过程的专业培训并了解法律权利可以提高护理者的生活质量。结论：家庭医生应关注照顾者和患者，在社会心理上支持照顾者，并提供有关姑息治疗和法律权利的教育。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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International journal of palliative nursing

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