‘A Moment for Me’: The Role of Respite in Sustaining Mental Health Carers

Abstract

Evidence suggests respite care reduces carers' burden by providing temporary relief, reducing stress and ensuring safety. Most research focuses on carers of people with dementia or physical disabilities, leaving a gap in understanding carers of individuals with mental illness (MI). Few studies explore their specific needs, indicating a crucial area for further research. This study utilised phenomenology to examine the perception of respite for those who care for people with mental illness. An interpretative phenomenological approach guided and informed the philosophy of the study. A purposive sample of 14 caregivers who utilise respite care (n = 14) provided narrative data through individual semi-structured interviews. Verbatim transcripts were analysed using van Manen's approach revealing eight key elements, four primary themes and an overarching essence of meaning. The themes include (1) feeling overwhelmed, (2) the process of obtaining respite, (3) facility suitability and (4) the need to keep going. The overarching essence of meaning was identified as “Constant care is constant.” This study presents an in-depth analysis of the findings, supplemented by a comprehensive exploration based on established theoretical frameworks. Carers benefit from respite services by improving their mental and physical health and quality of life, but service delivery needs enhancement. Service providers should improve communication, offer flexible scheduling, and tailor services to individual needs. Training and education for respite care workers, especially in managing challenging situations and providing emotional support, are vital. Raising awareness through collaborations with healthcare providers and community organisations can better inform carers about available options.