Sibling Brokerage: Recasting Sibling Roles as Systemic Labour Across Disability Service Systems

IF 2.2 3区医学 Q2 PSYCHOLOGY, EDUCATIONAL

Journal of Applied Research in Intellectual Disabilities Pub Date : 2026-06-01 DOI:10.1111/jar.70252

Jane Y. Jeong

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引用次数: 0

Abstract

Background and Aims

The study examines sibling brokerage as a form of cultural, linguistic and institutional labour performed by siblings of individuals with intellectual and developmental disabilities from historically marginalised communities.

Methods

Ten adult sibling brokers were recruited and completed open-ended questionnaires. Data were analysed thematically, guided by conceptual frameworks of epistemic injustice.

Results

Findings reveal that sibling brokers serve as system navigators, translating institutional logics, advocating for services and rearticulating family knowledge. Their labour often began in childhood, was shaped by hegemonic expectations to fit into the system and was frequently unacknowledged or co-opted by professionals.

Conclusion

Sibling brokerage is not ancillary but structurally embedded labour that compensates for systemic gaps in accessibility and inclusion. Future research should examine how such roles are institutionally produced and sustained and envision justice-oriented systems that recognise the expertise of sibling brokers.

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兄弟姐妹经纪：在残疾服务系统中重塑兄弟姐妹角色作为系统劳动力。

背景和目的：本研究考察了兄弟姐妹经纪作为一种文化、语言和制度劳动的形式，由来自历史上边缘化社区的智力和发育障碍个体的兄弟姐妹进行。方法：招募10名成年同胞经纪人，填写开放式问卷。在认识不公正的概念框架的指导下，对数据进行了专题分析。结果：研究结果表明，兄弟姐妹经纪人在翻译制度逻辑、倡导服务和重新表达家庭知识方面发挥了系统导航员的作用。他们的劳动往往始于童年，被适应体制的霸权期望所塑造，经常不被专业人士承认或接纳。结论：兄弟经纪不是辅助的，而是结构上嵌入的劳动力，弥补了可及性和包容性方面的系统性差距。未来的研究应该研究这些角色是如何在制度上产生和维持的，并设想以正义为导向的系统，承认兄弟经纪人的专业知识。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of Applied Research in Intellectual Disabilities Multiple-

CiteScore

4.70

自引率

12.50%

发文量

期刊介绍： JARID is an international, peer-reviewed journal which draws together findings derived from original applied research in intellectual disabilities. The journal is an important forum for the dissemination of ideas to promote valued lifestyles for people with intellectual disabilities. It reports on research from the UK and overseas by authors from all relevant professional disciplines. It is aimed at an international, multi-disciplinary readership. Topics covered include community living, quality of life, challenging behaviour, communication, sexuality, medication, ageing, supported employment, family issues, mental health, physical health, autism, economic issues, social networks, staff stress, staff training, epidemiology and service provision.