Co-design of an animated resource to understand inequities in access to diabetes technologies among children and young people with type 1 diabetes from ethnic minority groups and/or low socioeconomic areas

IF 4.4 Q1 ENDOCRINOLOGY & METABOLISM
Eda Tonga , Mark Evans , Nick Oliver , Sze May Ng , Natalie Darko
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引用次数: 0

Abstract

Aims

This study aimed to explore barriers to diabetes technology access and co-create an educational animation to address them.

Methods

Guided by a community-based participatory research (CBPR) approach and the Generative Co-Design Framework for Healthcare Innovation, the study followed three stages: Pre-Design, Co-Design, and Post-Design. It built on prior qualitative research and was shaped by input from an advisory panel. Co-design workshops informed the animation's content and style. A total of 16 participants were involved: 6 (2 parents, 4 young people) contributed to advisory sessions, and 10 (5 parents, 5 children and young people) participated in co-design workshops. Data were analysed using reflexive thematic analysis.

Results

Key barriers included misconceptions about cost, limited awareness of NHS-funded technologies, and emotional and financial burdens. Participants emphasised the importance of diverse representation, accessible language, and engaging visuals to ensure the animation resonated with a wide audience, including healthcare professionals, families, educators, and policymakers. Post-design evaluation confirmed its usability.

Conclusions

Guided by collaborative principles, the co-designed animation is a valuable tool for raising awareness and promoting equitable access to diabetes technology. Future research should explore broader implementation and standardisation of such educational tools across NHS services.
共同设计一个动画资源,以了解少数民族和/或低社会经济地区的1型糖尿病儿童和青少年在获得糖尿病技术方面的不平等。
目的:本研究旨在探讨糖尿病技术获取的障碍,并共同制作一个教育动画来解决这些障碍。方法:采用基于社区的参与式研究(CBPR)方法和医疗保健创新的生成式协同设计框架为指导,研究分为三个阶段:设计前、协同设计和设计后。它建立在先前的定性研究的基础上,并由咨询小组的意见形成。共同设计研讨会为动画的内容和风格提供了信息。共有16名参与者参与其中:6名(2名家长,4名年轻人)参与了咨询会议,10名(5名家长,5名儿童和年轻人)参加了共同设计研讨会。数据分析采用反身性主题分析。结果:主要障碍包括对成本的误解,对nhs资助的技术的有限认识,以及情感和经济负担。与会者强调了多样化表现、无障碍语言和引人入胜的视觉效果的重要性,以确保动画与广泛的观众产生共鸣,包括医疗保健专业人员、家庭、教育工作者和政策制定者。设计后评估确认了它的可用性。结论:在协作原则的指导下,共同设计的动画是提高认识和促进公平获取糖尿病技术的宝贵工具。未来的研究应该探索在NHS服务中更广泛地实施和标准化这种教育工具。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
CiteScore
22.90
自引率
2.00%
发文量
248
审稿时长
51 days
期刊介绍: Diabetes and Metabolic Syndrome: Clinical Research and Reviews is the official journal of DiabetesIndia. It aims to provide a global platform for healthcare professionals, diabetes educators, and other stakeholders to submit their research on diabetes care. Types of Publications: Diabetes and Metabolic Syndrome: Clinical Research and Reviews publishes peer-reviewed original articles, reviews, short communications, case reports, letters to the Editor, and expert comments. Reviews and mini-reviews are particularly welcomed for areas within endocrinology undergoing rapid changes.
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