A systematic review of the social functioning of youth with JIA: Barriers, stigma, and resources.

IF 2.4 3区心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL

Journal of Pediatric Psychology Pub Date : 2026-08-01 DOI:10.1093/jpepsy/jsag032

Kristina Jelinkova, Kaveena Natasha, Marinka Twilt, Kathryn A Birnie, Emma A Climie

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引用次数: 0

Abstract

Objective: To examine the social experiences of youth with Juvenile idiopathic arthritis (JIA).

Methods: This systematic review synthesizes findings from 18 qualitative studies (2014-2024) based on a search from four databases (Scopus, PubMed, Web of Science, and PsycINFO). The studies were assessed for quality using the Critical Appraisal Skills Programme Qualitative Checklist (CASP, 2024).

Results: Six key themes emerged: (1) Physical Barriers to Social Interaction, (2) Lack of Understanding from Others, (3) Enacted Stigma, (4) Anticipated Stigma, (5) Internalized Stigma, and (6) Resources.

Conclusions: The review findings support increasing public awareness, fostering peer support, enhancing self-advocacy skills, and implementing stigma-reduction strategies to better support the social functioning of youth with JIA. Future research should explore long-term effects of stigma and evaluate targeted interventions to improve social experiences and quality of life for this population.

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对JIA青少年社会功能的系统回顾：障碍、污名和资源。

目的：探讨青少年特发性关节炎（JIA）患者的社会经历。方法：本系统综述基于四个数据库（Scopus、PubMed、Web of Science和PsycINFO）的检索，综合了18项定性研究（2014-2024）的结果。使用关键评估技能计划定性检查表（CASP, 2024）评估研究的质量。结果：研究发现了六个关键主题：(1)社会互动的物理障碍，(2)缺乏他人的理解，(3)制定的耻辱，(4)预期的耻辱，(5)内化的耻辱，以及(6)资源。结论：审查结果支持提高公众意识，促进同伴支持，提高自我倡导技能，并实施减少耻辱感的战略，以更好地支持JIA青年的社会功能。未来的研究应该探索耻辱感的长期影响，并评估有针对性的干预措施，以改善这一人群的社会体验和生活质量。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Journal of Pediatric Psychology PSYCHOLOGY, DEVELOPMENTAL-

CiteScore

6.00

自引率

11.10%

发文量

期刊介绍： The Journal of Pediatric Psychology is the official journal of the Society of Pediatric Psychology, Division 54 of the American Psychological Association. The Journal of Pediatric Psychology publishes articles related to theory, research, and professional practice in pediatric psychology. Pediatric psychology is an integrated field of science and practice in which the principles of psychology are applied within the context of pediatric health. The field aims to promote the health and development of children, adolescents, and their families through use of evidence-based methods.