Healthcare Professionals' Perspectives on Unmet Needs and Service Provision for Patients With Cancer and Caregivers in Türkiye: An Exploratory Study.

IF 3.5 2区 医学 Q2 ONCOLOGY
Ozan Bahcivan, Mehmet Salduz, Levent Ertuna, Youngmee Kim
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Abstract

Objective: Understanding the availability of various supportive care services for patients and caregivers is essential for informing national healthcare strategies and research priorities. Given the crucial role of healthcare professionals (HCPs) in delivering supportive care, this study examined their perspectives on assessing cancer-related unmet needs and differences in service provision for patients versus caregivers in Türkiye, a lower-middle-income country.

Methods: Data were drawn from the Turkish subsample of the International Psycho-Oncology Society Survivorship Online Survey who provided valid responses (n = 52). Participants reported on institutional practices related to the assessment and service provision for 13 kinds of unmet needs for patients and caregivers.

Results: Most institutions systematically assessed (≥ 50%) and provided services to address unmet needs (≥ 51.9%) for patients, whereas only few did so for caregivers (19.2%, ≤ 23.1%, respectively). Medical concerns for patients (78.8%) and psychosocial issues for caregivers (19.2%) were most frequently assessed, and services for emotional distress were most frequently provided for both patients and caregivers (82.7% and 23.1%, respectively). Sexuality/intimacy and financial concerns were least assessed and addressed (≤ 50.0% for patients, ≤ 15.4% for caregivers). Differences in assessments and service provision between patients and caregivers were significant across all unmet needs with large effect sizes (all p < 0.001, Cramer's V = 0.52 - 0.62).

Conclusions: Findings highlight both strengths and gaps in supportive care service provision and guide the development of integrated, comprehensive, and equitable programs for populations affected by cancer in Türkiye. These results also provide an initial foundation for future large-scale and longitudinal studies aimed at addressing the unmet needs of individuals affected by cancer.

医疗保健专业人员对 rkiye癌症患者和护理人员未满足需求和服务提供的看法:一项探索性研究。
目的:了解对患者和护理人员的各种支持性护理服务的可用性对于告知国家卫生保健战略和研究重点至关重要。鉴于医疗保健专业人员(HCPs)在提供支持性护理方面的关键作用,本研究考察了他们在评估癌症相关未满足需求方面的观点,以及在中等偏下收入国家泰国为患者和护理人员提供服务方面的差异。方法:数据来自国际心理肿瘤学会生存在线调查的土耳其亚样本,他们提供了有效的回复(n = 52)。与会者报告了与评估和为患者和护理人员提供13种未满足需求的服务有关的机构做法。结果:大多数机构系统地评估(≥50%)并提供服务以解决患者未满足的需求(≥51.9%),而只有少数机构对护理人员进行了系统评估(分别为19.2%和≤23.1%)。最常评估的是患者的医疗问题(78.8%)和护理人员的社会心理问题(19.2%),最常为患者和护理人员提供的是情绪困扰服务(分别为82.7%和23.1%)。对性/亲密关系和经济问题的评估和处理最少(患者≤50.0%,护理人员≤15.4%)。在所有未满足的需求中,患者和护理人员之间在评估和服务提供方面的差异是显著的,具有很大的效应量(所有p)。结论:研究结果突出了支持性护理服务提供的优势和差距,并指导了为 rkiye受癌症影响人群制定综合、全面和公平的计划。这些结果也为未来旨在解决癌症患者未满足需求的大规模和纵向研究提供了初步基础。
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来源期刊
Psycho‐Oncology
Psycho‐Oncology 医学-心理学
CiteScore
6.30
自引率
8.30%
发文量
220
审稿时长
3-8 weeks
期刊介绍: Psycho-Oncology is concerned with the psychological, social, behavioral, and ethical aspects of cancer. This subspeciality addresses the two major psychological dimensions of cancer: the psychological responses of patients to cancer at all stages of the disease, and that of their families and caretakers; and the psychological, behavioral and social factors that may influence the disease process. Psycho-oncology is an area of multi-disciplinary interest and has boundaries with the major specialities in oncology: the clinical disciplines (surgery, medicine, pediatrics, radiotherapy), epidemiology, immunology, endocrinology, biology, pathology, bioethics, palliative care, rehabilitation medicine, clinical trials research and decision making, as well as psychiatry and psychology. This international journal is published twelve times a year and will consider contributions to research of clinical and theoretical interest. Topics covered are wide-ranging and relate to the psychosocial aspects of cancer and AIDS-related tumors, including: epidemiology, quality of life, palliative and supportive care, psychiatry, psychology, sociology, social work, nursing and educational issues. Special reviews are offered from time to time. There is a section reviewing recently published books. A society news section is available for the dissemination of information relating to meetings, conferences and other society-related topics. Summary proceedings of important national and international symposia falling within the aims of the journal are presented.
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