Nerea Azcárate-Cenoz, Cristina Alfaro-Díaz, Ana Ojer Perea, María Ángeles Soteras Ramírez, Cristina Arellano Gil, Patricia Beorlegui Murillo, Nuria Esandi
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引用次数: 0
Abstract
Introduction: Cancer significantly impacts patients and their families, disrupting their emotional, relational, and organisational dynamics. Outpatient oncology nurses play a pivotal role in addressing the complex and evolving needs of patients with cancer and their families. Including the perspectives of nurses, family members, and patients within this care setting may inform the development of appropriate care services responsive to their real needs. This study aimed to gain a comprehensive and integrated understanding of how nurses, patients, and family members experience cancer and caring in outpatient oncology consultations.
Methods: A multi-method qualitative study was conducted as part of a larger Experience-Based Co-Design project. Data were collected between January and May 2024 through non-participant observations, field notes, and semi-structured interviews with patients, family members, and nurses. Data were analysed using inductive thematic analysis, integrating findings across participant groups and data collection methods.
Results: Through the integrated data analysis of observations, field notes, and individual stakeholders' interviews, three key themes emerged: (i) Cancer: a family affair; (ii) the needs of patients with cancer and their families; and (iii) the importance of establishing a trust-based nurse-family relationship.
Conclusions: This study provides a comprehensive understanding of the experiences of patients, families, and nurses in outpatient oncology care, underscoring the critical role of a family-oriented approach in care to provide support to families facing the multifaceted challenges posed by the illness. Insights from this research will inform the next phase of an Experience-Based Co-Design study to design a nurse-led family support intervention for patients with cancer and their family members.
期刊介绍：
Scandinavian Journal of Caring Sciences is an established quarterly, peer reviewed Journal with an outstanding international reputation. As the official publication of the Nordic College of Caring Science, the Journal shares their mission to contribute to the development and advancement of scientific knowledge on caring related to health, well-being, illness and the alleviation of human suffering. The emphasis is on research that has a patient, family and community focus and which promotes an interdisciplinary team approach. Of special interest are scholarly articles addressing and initiating dialogue on theoretical, empirical and methodological concerns related to critical issues. All articles are expected to demonstrate respect for human dignity and accountability to society. In addition to original research the Journal also publishes reviews, meta-syntheses and meta-analyses.
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