Experiences of mothering children with autism spectrum disorder.

Abstract

Objective: to investigate the challenges faced and the strategies adopted by mothers of children with autism spectrum disorder in the experience of mothering.

Method: a descriptive study, with a qualitative approach, was supported by the Sensitive Creative Method, using the "Tree of Knowledge" dynamic. It was conducted in July 2024 in a room at the State University of Pará. Thirteen mothers of children with the disorder participated. The data were subjected to French Discourse Analysis.

Results: the process of caring for a neuroatypical child begins with maternal perception of the first signs of atypicality, triggering a lonely and painful search for explanations. The difficulties faced involve the lack of preparation of health professionals, the high cost and slowness of diagnosis, as well as feelings such as guilt, denial and despair. However, over time, mothers develop internal strategies (patience, love, faith, resilience and knowledge) and external strategies (support network, therapies, medications) that strengthen the exercise of motherhood.

Final considerations: the impacts of the disorder result in the redefinition of the mothering process. It is necessary to give visibility to the demands of these mothers, promote spaces for qualified listening and to train health professionals, essential to promote quality of life for mothers, children and the dynamics of maternal care.