Availability of care for people with diabetes: An exploratory study.

Abstract

Background India has the highest number of people with diabetes in the world. Health services for people with diabetes in India are varied with regard to quality, access, and affordability. We explored the various facets of care being provided for diabetes mellitus. Methods A descriptive phenomenological study (qualitative research) was conducted in Rohtak, Haryana, India, during March-April 2022. Thirty-four participants were recruited via purposive sampling. These included 17 people with diabetes and 17 healthcare workers. In-depth interviews were conducted in a semi-structured format after taking written informed consent. Data were recorded and then transcribed. On analysis, initial codes were grouped into meaningful themes. Results Three themes each were drawn from the qualitative data. The patient interviews yielded diagnosis, management, complications, and emotional burden of the disease. The daily ordeals of people with diabetes were understood better. The healthcare workers' themes were-experiences so far, complications, and policy recommendations. This focused on the healthcare workers' experiences as providers of care. Conclusion Policy decisions, including a structured referral linkage, are needed to improve care for people with diabetes. Accredited social health activists must be incentivized to screen for diabetes at the village level. Newer initiatives under the Ayushman Bharat Digital Mission, Health and Wellness Centres, and the National Programme for Prevention and Control of Cancer, Diabetes, Cardiovascular Diseases and Stroke are steps in the right direction.