Enhancing Perinatal Care for Women With Intellectual Disabilities: Clinician Insights on Involving Family Caregivers

IF 2.2 3区医学 Q2 PSYCHOLOGY, EDUCATIONAL

Journal of Applied Research in Intellectual Disabilities Pub Date : 2026-02-16 DOI:10.1111/jar.70194

Lauren D. Smith, Anne Valentine, Tiffany A. Moore Simas, Susan L. Parish, Robyn Powell, Luanjiao Hu, Monika Mitra

{"title":"Enhancing Perinatal Care for Women With Intellectual Disabilities: Clinician Insights on Involving Family Caregivers","authors":"Lauren D. Smith, Anne Valentine, Tiffany A. Moore Simas, Susan L. Parish, Robyn Powell, Luanjiao Hu, Monika Mitra","doi":"10.1111/jar.70194","DOIUrl":null,"url":null,"abstract":"<div>\n \n \n <section>\n \n <h3> Background</h3>\n \n <p>Women with intellectual disabilities experience disparities in perinatal outcomes and unmet needs in perinatal care. Many women with intellectual disabilities receive support from family caregivers, including accompaniment to healthcare visits. This qualitative study explores the experiences of obstetric care clinicians navigating perinatal care with family caregivers of women with intellectual disabilities.</p>\n </section>\n \n <section>\n \n <h3> Methods</h3>\n \n <p>Transcripts from interviews (<i>n</i> = 9) and a focus group (<i>n</i> = 8) with 17 obstetric care clinicians were analyzed using a thematic analysis approach.</p>\n </section>\n \n <section>\n \n <h3> Results</h3>\n \n <p>Four major themes emerged: (1) determining intellectual disability and guardianship status; (2) decision-making; (3) navigating ethical, legal, relational, and clinical challenges; (4) caregivers as an integral part of perinatal care.</p>\n </section>\n \n <section>\n \n <h3> Conclusions</h3>\n \n <p>Family caregiver involvement in perinatal care of women with intellectual disabilities has benefits but can also present challenges for obstetric care clinicians. Clinicians need guidance on how to appropriately manage perinatal care of women with intellectual disabilities.</p>\n </section>\n </div>","PeriodicalId":51403,"journal":{"name":"Journal of Applied Research in Intellectual Disabilities","volume":"39 1","pages":""},"PeriodicalIF":2.2000,"publicationDate":"2026-02-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12907783/pdf/","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Applied Research in Intellectual Disabilities","FirstCategoryId":"3","ListUrlMain":"https://onlinelibrary.wiley.com/doi/10.1111/jar.70194","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"PSYCHOLOGY, EDUCATIONAL","Score":null,"Total":0}

引用次数: 0

Abstract

Background

Women with intellectual disabilities experience disparities in perinatal outcomes and unmet needs in perinatal care. Many women with intellectual disabilities receive support from family caregivers, including accompaniment to healthcare visits. This qualitative study explores the experiences of obstetric care clinicians navigating perinatal care with family caregivers of women with intellectual disabilities.

Methods

Transcripts from interviews (n = 9) and a focus group (n = 8) with 17 obstetric care clinicians were analyzed using a thematic analysis approach.

Results

Four major themes emerged: (1) determining intellectual disability and guardianship status; (2) decision-making; (3) navigating ethical, legal, relational, and clinical challenges; (4) caregivers as an integral part of perinatal care.

Conclusions

Family caregiver involvement in perinatal care of women with intellectual disabilities has benefits but can also present challenges for obstetric care clinicians. Clinicians need guidance on how to appropriately manage perinatal care of women with intellectual disabilities.

查看原文本刊更多论文

加强智障妇女围产期护理：临床医生对家庭照顾者参与的见解。

背景：智力残疾妇女在围产期结局和围产期护理需求方面存在差异。许多智障妇女得到家庭照顾者的支持，包括陪同她们去看保健。本定性研究探讨了产科护理临床医生的经验导航围产期护理与家庭照顾者的妇女智障。方法：采用专题分析方法对17名产科护理临床医生的访谈记录（n = 9）和焦点小组（n = 8）进行分析。结果：出现了四个主要主题：(1)确定智力残疾和监护地位；(2)决策;(3)应对伦理、法律、关系和临床挑战；(4)护理人员作为围产期护理的组成部分。结论：家庭护理人员参与智力残疾妇女的围产期护理有好处，但也可能给产科护理临床医生带来挑战。临床医生需要关于如何适当管理智力残疾妇女围产期护理的指导。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

求助全文

约1分钟内获得全文求助全文

来源期刊

Journal of Applied Research in Intellectual Disabilities Multiple-

CiteScore

4.70

自引率

12.50%

发文量

期刊介绍： JARID is an international, peer-reviewed journal which draws together findings derived from original applied research in intellectual disabilities. The journal is an important forum for the dissemination of ideas to promote valued lifestyles for people with intellectual disabilities. It reports on research from the UK and overseas by authors from all relevant professional disciplines. It is aimed at an international, multi-disciplinary readership. Topics covered include community living, quality of life, challenging behaviour, communication, sexuality, medication, ageing, supported employment, family issues, mental health, physical health, autism, economic issues, social networks, staff stress, staff training, epidemiology and service provision.