Hollyanna Wilson, Karen Irvine, Regi T. Alexander, Silvana E. Mengoni
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引用次数: 0
Abstract
Background
Easy Read materials are sometimes provided by healthcare services to help people with intellectual disabilities to understand written information. This study examined literature on the development, review, regulation, delivery, and impact of Easy Read health information (ERHI) with the aim of elucidating best practice.
Methods
A systematic review of five bibliographic databases and three grey literature databases was registered, conducted, and synthesised using meta-aggregation. Studies from 2006 onward regarding ERHI for individuals with intellectual disabilities were included.
Results
The twenty-nine included studies revealed variability in ERHI development, review, and quality control processes. Individuals with intellectual disabilities valued ERHI and assistance in appraising it, however empirical evidence of ERHI effectiveness was limited.
Conclusions
ERHI's empirical evidence base is underdeveloped and largely consists of low-quality research. Subjective and inconsistent application of guidance leads to variable ERHI quality. Standardised resources and rigorous research are needed to evaluate ERHI as a health education intervention.
期刊介绍:
JARID is an international, peer-reviewed journal which draws together findings derived from original applied research in intellectual disabilities. The journal is an important forum for the dissemination of ideas to promote valued lifestyles for people with intellectual disabilities. It reports on research from the UK and overseas by authors from all relevant professional disciplines. It is aimed at an international, multi-disciplinary readership. Topics covered include community living, quality of life, challenging behaviour, communication, sexuality, medication, ageing, supported employment, family issues, mental health, physical health, autism, economic issues, social networks, staff stress, staff training, epidemiology and service provision.