Inspiring That EUREKA Moment: The Importance of Patient Co-Design of Outputs from interRAI Assessments.

Abstract

There are rich data available from assessments like the interRAI Mental Health that may not be shared with patients in usable ways. We outline a co-design process as an example for health system providers interested in developing platforms for sharing interRAI information with care recipients. Persons with lived experience (current and past service users) identified design specifications for summaries of interRAI data over a series of co-design workshops, including visual and text representations of clinical information as well as processes for sharing summaries with patients. Graphic and text considerations were identified in workshops, including icons associated with key clinical issues and nuanced text summaries of assessment outputs and implications. Participants noted that persons in inpatient care should review this information once stable, and with assistance of a peer support specialist. This work affirms that it is not only desirable, but entirely achievable from an organizational perspective to prioritize and integrate patient voices in the design and use of clinical information.