Self-Care Experiences and Behaviours in People With Parkinson's Disease: A Meta-Synthesis.

Abstract

BackgroundParkinson's disease (PD) is the fastest-growing neurodegenerative condition globally, significantly impairing self-care capacity due to its complex motor and nonmotor symptoms. Caregiver involvement is often essential.ObjectiveThis review aims to synthesise qualitative evidence on self-care behaviours and experiences in individuals with PD, from both patient and caregiver perspectives.MethodsA qualitative meta-synthesis was conducted using Sandelowski and Barroso's methodology. Fifty-two eligible studies were analysed. Thematic categories were mapped onto Riegel's self-care framework: maintenance, monitoring, and management.ResultsSelf-care maintenance emerged as the most frequently reported dimension. Across all three dimensions, caregiver support played a central role in enabling effective symptom control and treatment adherence.ConclusionsThe synthesis highlights the critical importance of supporting self-care-especially maintenance behaviours-in PD management. It also emphasizes the vital role caregivers play in reinforcing self-care, pointing to the need for integrated support structures in clinical and research contexts.RegistrationThis review was registered in PROSPERO (https://www.crd.york.ac.uk/PROSPERO/view/CRD42024598072).