Personalising Supportive Healthcare for Immune-Mediated Inflammatory Disorders: A Qualitative Exploration of Patient Needs and Behaviours Based on the Subjective Health Experience Model.
Tessa S Folkertsma, Greetje J Tack, Robert M Vodegel, Sjaak Bloem, Aad R Liefveld, Maya Schroevers, Reinhard Bos
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引用次数: 0
Abstract
Current insights into how to personalise supportive care for patients with immune-mediated inflammatory disorders (IMIDs) remain limited. Enhancing supportive care can significantly improve patients' quality of life and overall healthcare. The Subjective Health Experience (SHE) model offers a practical framework for segmenting patients based on disease acceptance and control, potentially guiding tailored supportive care. This qualitative study had two aims: explore patient characteristics (behaviours, questions, and needs) within each SHE Segment; and determine required supportive care per Segment by identifying the what (specific types of supportive healthcare) and the how (approach of healthcare delivery). Group discussions and individual interviews were conducted with 19 healthcare professionals in rheumatology, gastroenterology, and dermatology, and 18 patients diagnosed with rheumatoid arthritis/spondyloarthritis, Crohn's disease/ulcerative colitis, or psoriasis/hidradenitis suppurativa. Findings revealed consistent patterns across IMIDs regarding healthcare needs. Patients emphasised the importance of attention and acknowledgement, while healthcare professionals focused on structure and planning. Detailed Segment descriptions supported development of a structured framework aligning supportive care types and delivery approaches with each SHE Segment. Overall, these results support the SHE framework as a guidance for coordinating supportive care across conditions, professionals, and care levels, enhancing its operational use in IMID care to improve personalisation and continuity.
期刊介绍：
Established in 2000, IJIC’s mission is to promote integrated care as a scientific discipline. IJIC’s primary purpose is to examine critically the policy and practice of integrated care and whether and how this has impacted on quality-of-care, user experiences, and cost-effectiveness.
The journal regularly publishes conference supplements and special themed editions. To find out more contact Managing Editor, Susan Royer.
The Journal is supported by the International Foundation for Integrated Care (IFIC).
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